At first, the bad news hit Patrick Terry hard: His right leg would have to be amputated below the knee due to an infection.
“I cried for about half an hour that day, sobbing,” he said.
Then he remembered something a mentor taught him: the Serenity Prayer.
“God, grant me the serenity to accept the things I cannot change, courage to change the things I can, and wisdom to know the difference.”
That was 2009. Terry, a U.S. Navy veteran and longtime Union Beach resident, accepted his condition. Then he sought to make the best of it by participating in adaptive sports. His quest reached an apex last month, when he won six medals — three gold, one silver and two bronze — at the National Veterans Wheelchair Games in New York City.
At age 72.
“My family and the people that know me are proud of me and just overwhelmed that I could do this,” he said.
From addiction to adaptive sports
Originally from Yonkers, N.Y., Terry competed in football and track in high school and enlisted in the Navy in 1969, serving aboard the USS Albany. He later served in the U.S. Navy Reserve and worked for New York City’s Department of Transportation, paving and milling roads.
By 2005, he was in need of help for alcohol and drug addiction. A sponsor in a 12-step recovery program introduced him to the Serenity Prayer.
“That freed me to be the person I am,” Terry said. “I now have 16 years clean and sober. I used to blame everybody else for my problems. The problems, they were with me.”
In 2009 he joined the East Orange Thunder, an adaptive sports team comprised of veterans and founded by Ralph Jones, a recreational therapist with the Veterans Affairs New Jersey Health Care System.
“He picked up on all the adaptive sports quickly,” Jones said. “He’s just a natural athlete.”
Click here to read the full article on Asbury Park Press.
The first Barbie doll representing a person with Down syndrome was released by Mattel “to allow even more children to see themselves in Barbie,” the company said.
“We are proud to introduce a Barbie doll with Down syndrome to better reflect the world around us and further our commitment to celebrating inclusion through play,” Lisa McKnight, the executive vice president and global head of Barbie & dolls at Mattel, said in a statement.
In the past, Mattel’s Barbie has been criticized for spreading unrealistic beauty standards for the children who play with the doll. In recent years, the company has moved to deviate from that reputation by offering more diverse dolls. It started making Barbie and Ken dolls with wheelchairs, vitiligo, hearing aids, and prosthetic limbs. The company unveiled its “most diverse doll line” in its 2023 Fashionistas lineup, which includes the doll with Down syndrome.
“Our goal is to enable all children to see themselves in Barbie, while also encouraging children to play with dolls who do not look like themselves. Doll play outside of a child’s own lived experience can teach understanding and build a greater sense of empathy, leading to a more accepting world,” McKnight said.
Barbie worked with the National Down Syndrome Society in order to accurately represent a person with Down syndrome. That included shaping the doll’s body to include a shorter frame and longer torso and a round face that features smaller ears and almond-shaped, slanted eyes, the NDSS said in their announcement.
The doll wears a yellow and blue dress with butterflies, all symbols associated with Down syndrome awareness, according to NDSS.
Even the doll’s pink necklace has special meaning. Its three upward chevrons are meant to represent “the three copies of the 21st chromosome, which is the genetic material that causes the characteristics associated with Down syndrome,” according to the organization.
NDSS President and CEO Kandi Pickard said in the group’s statement, “This Barbie serves as a reminder that we should never underestimate the power of representation. It is a huge step forward for inclusion and a moment that we are celebrating.”
Ellie Goldstein, a British model with Down Syndrome, took to Instagram in a partnership with Mattel to share how important seeing the doll was to her.
“When I saw the doll I felt so emotional, and proud. It means a lot to me that children will be able to play with the doll and learn that everyone is different. I am proud that Barbie chose me to show the dolls to the world,” she wrote on Instagram. “Diversity is important as people need to see more people like me out there in the world and not be hidden away, Barbie will help make this happen.”
The Barbie doll with Down syndrome will be available at major retailers this summer and fall for $10.99.
GUIDE Beauty, a collection of makeup tools and products that has reimagined the way we apply makeup, is thrilled to announce Selma Blair as their Chief Creative Officer.
Internationally acclaimed actress, author, advocate, style and beauty icon, Blair will join GUIDE as a partner and take a leadership role in product and brand development for the multi-award-winning company. Combining forces with GUIDE’s Founder Terri Bryant, Blair will help the brand to accelerate its mission to expand inclusivity in the world of beauty through thoughtful, universally-designed products for everyone.
“We are proud to welcome Selma to the family,” says Bryant, founder of GUIDE Beauty. “Her devotion to creative expression and advocacy for all people fits perfectly with GUIDE Beauty’s mission and practice of Universal Design – when we design with all people in mind, we create the best products for everyone. From the novice to somebody who has challenges with movement or strength and even the professional makeup artist on set, GUIDE’s products enhance the lives of makeup users everywhere.”
In the prime of her career as a makeup artist and beauty educator, Bryant started to notice stiffness in her shoulder and a loss of dexterity in her hands. Makeup artistry that had been second nature was becoming a real struggle due to the inaccessibility of products that suited her needs. She was eventually diagnosed with Parkinson’s. Empowered by knowledge and a life-long love of makeup, she partnered with human factors designers and clean chemists to create a better, easier way and a new, more inclusive approach for the beauty industry with products designed for the broadest universe of makeup users.
“As a professional makeup artist, I felt a natural ability that most of my friends, family, and clients did not share,” continues Bryant. “When that ability shifted due to the onset of Parkinson’s Disease, it became so clear that my needs, like so many, had not been considered in the design and development of the products I had always used, so I decided it was time to create them.”
“When I first held the GUIDE Wand, I immediately felt more confident than I ever had with a traditional pencil liner and found myself looking forward to doing my own makeup for the first time in a long time,” says Blair, who revealed her diagnosis of Multiple Sclerosis in 2018. “Upon meeting Terri, we bonded instantly over our mutual love of makeup and its ability to transform a face and a day. I’m thrilled to join her and GUIDE to create and advocate for a more inclusive world of beauty.”
GUIDE Beauty today also introduces its new makeup brush collection utilizing its patented GUIDE Ring to steady the hand and make application smooth and easy as well as its first eyeshadow palette that has been designed with Blair to showcase beautiful, easy-to-wear neutrals for everyday or a special red-carpet moment.
In addition to the new launches, GUIDE’s debut collection, which launched in early 2020 and revolutionized ability-inclusivity in beauty, includes Lash Wrap Mascara and Brow Moment Brow Gel, both featuring the GUIDE Ring, and the award-winning GUIDE Eyeliner Duo. The Eyeliner Duo has become the hero SKU among customers, influencers, and media, receiving Allure’s Best of Beauty Breakthrough, ELLE’s Future of Beauty, O, The Oprah Magazine’s O-Ward, and Essence’s Best in Black Beauty, among other prestigious awards.
The GUIDE Wand eyeliner applicator is celebrated for its unique, forward-thinking, ergonomically and universally-designed shape, paired with the GUIDE Line pressed-cream eyeliner to make looks like tightlining, waterline application, and even winged liner a cinch. All GUIDE Beauty formulas are cruelty-free, 100 percent vegan, and formulated without known toxins or harsh ingredients.
Blair, Bryant, and the GUIDE Beauty team are currently developing additional universally-designed makeup products to improve the lives of makeup users and are committed to advocating for inclusive and empowering beauty for all.
Not too many kids get to meet their heroes but Keivonn Woodward Keivonn Woodwar isn’t your ordinary kid.
The 10-year-old actor is deaf with dreams of becoming the first Black deaf hockey player in the NHL.
His aspirations recently caught the attention of the Washington Capitals star, Alex Ovechkin, who Woodward is a huge fan of, and invited him to spend the day at the teams facility, according to USA Today.
The viral moment of the meeting for the first time is enough to bring tears to your eyes.
The star of “The Last of Us” received a tour of the facility and even got some time on the rink. He scored twice while running practice drills with the team goalie, Charlie Lindgren, and forward, Nicolas Aube-Kubel.
The Russian hockey star presented Woodward with an autographed hockey stick. Thanks to an ASL interpreter, the Maryland native was able to express his excitement. “Oh, this is so cool,” Woodard said according to the Daily Mail. “I can’t believe it. This is a dream of mine.”
The surprises didn’t end there. Woodward got the chance to meet Devante Smith-Pelly, a former Capitals forward, and one of 11 Black players who have played for the organization. Both Woodward and Smith-Pelly participated in the puck drop for the “Celebrating Black History” pregame festivities. Woodward stayed for the game where the Capitals beat the New York Rangers at home. He was among other “Rising Stars” and was honored during the game.
The moment came full circle as earlier this year, the Capitals provided a $10,000 grant to the Bowie Hockey Club in Maryland, where Woodard is a member. Thanks to the club’s “missions and impact toward diversity in hockey,” a portion of the grant was used to support Woodward with an ASL interpreter and special hockey equipment.
Read the original article from Black Enterprise here.
Odd couple Benton the Great Pyrenees and Boone the disabled raccoon are best friends helping each other make it through life with a positive attitude.
The duo lives at Nolin River Wildlife Sanctuary in Glendale, Kentucky — a sanctuary dedicated to nursing wild animals back to full health.
“Boone was diagnosed with a rare disorder, cerebral hypoplasia, that makes it very difficult for him to get around,” Mary Key, Nolin River’s founder, tells PEOPLE. “He came to us as a baby, and when it was time for him to start walking, I noticed there was a problem.”
Hoping to help Boone with his walking skills, Key looked up wheelchairs for animals on the internet but found that the nonprofit couldn’t afford the options available. So she reached out to a friend at nearby Central Hardin High to see if the school’s engineering students could help. The engineering teacher, Russ Pike, replied it was the perfect real-world project for his students.
“From the first time they brought Boone to class for the kids to meet him, they were fully on board. It’s pretty neat. Most of the time, you’re trying to get kids involved and engaged. Well, we had to reign them in because they were so excited,” Key says of the enthusiasm for the project.
Over the past few months, Boone regularly visited the high school so the engineering students could measure the raccoon for fittings and make adjustments to their prototypes. After a bit of tinkering, the students came up with a wheelchair — their third prototype — that worked for Boone.
“It’s amazing! The look on Boone’s face when we first put him in it … I was crying. He gets really engaged and gets a very purposeful look, and when he first moved in the chair, you could see him looking like this is different, and this is good,” Key says of Boone’s reaction to the custom creation. “He is absolutely adorable and unbelievably sweet, and now he can get around on his own.”
The United States is currently experiencing a massive demographic shift, led in large part by the nation’s Latinx population. This group is growing rapidly, quickly becoming the most culturally and economically influential community in the country.
According to the 2020 U.S. Census, the country’s Hispanic or Latinx population grew from 50.5 million in 2010 (16.3% of the U.S. population) to 62.1 million in 2020 (18.7%). That’s an increase of 23 percent. In fact, slightly more than half (51.1%) of the total U.S. population growth between 2010 and 2020 came from growth in the country’s Latinx population.
It is no surprise then, that Latinx people have a massive effect on the U.S. economy. Their buying power is expected to reach $1.9 trillion by 2023, according to a report from Nielsen. This is up from $213 billion in 1990, marking an over 200% growth rate, more than double the growth in buying power of non-Latinx consumers.
This community’s economic influence reaches all industries, and it is critical that businesses gain a deeper understanding of Latinx culture. Doing so will allow business leadership to both better support employees and more effectively appeal to customers.
Understanding the Hypercultural Latinx individual
Among young Latinx people, there has been a rise in what is known as the “Hypercultural Latinx.”
Hypercultural Latinx people are often first-generation Americans who straddle both U.S. culture and their parents’ native Hispanic cultures. This group feels deeply connected to both aspects of their identities and has, in a sense, created their own blended, hybrid culture. As Ilse Calderon, an investor at OVO Fund, wrote on TechCrunch, a Hypercultural Latinx person is “100% Hispanic and 100% American.”
So, what do they want to buy? While Latinx people are clearly not a monolith, there are a few key trends across the community. According to research in the PwC Consumer
Intelligence Series, the Latinx population is especially enticed by new tech products. They are active on TikTok and exceedingly more likely to use WhatsApp and other social media platforms than other groups.
Nielsen also found that 45% of Latinx consumers buy from brands whose social values and causes align with theirs. This is 17% higher than the general population. Latinx people also share strong family values, as well as pride in their distinct cultural heritages. That is why organizations must engage the Latinx community and invite Latinx people to share their experiences.
It is pivotal that business leaders understand that “Latinx” is not a single streamlined culture. Rather, it is a diverse mix of traditions, nationalities, and values.
Embracing these cultural nuances is a key to understanding Latinx audiences. Organizations must consider methods to appeal to distinct Latinx groups, rather than marketing to the group as a whole.
Cultivating and advancing Latinx talent in the workplace
It isn’t only consumers that businesses should be thinking about. Latinx talent has also accounted for a massive 75% of U.S. labor force growth over the past six years, according to Nielsen. Nevertheless, only 3.8% of executive positions are held by Latinx men, and only 1.5% of are held by Latinx women.
Clearly, companies have a lot of work to do to attract and cultivate Latinx talent—and it all starts with recruitment. To ensure a diverse work force, companies must utilize culturally competent recruitment strategies that not only make new positions appealing to a variety of job seekers, but also give every applicant a fair chance.
According to an article in Hispanic Executive, understanding cultural differences can help recruiters create job descriptions that more effectively appeal to different communities. For example, the Latinx community feels a more communal sense of identity, compared to the more individualistic sense of identity in European-American culture. Recruiters should keep this in mind when thinking about what necessary skills they are highlighting for available roles.
Click here to read the complete article on Bloomberg.
“You have to work hard on being your true self, and believe in the brands you promote.”
Words of advice from 32-year-old disabled influencer Tess Daly from Sheffield, who uses her 200,000-plus followers on Instagram to promote her beauty tutorials and advertise beauty brands.
Electric wheelchair-user Tess, who has spinal muscular atrophy (SMA), has worked on social marketing campaigns for the likes of Boohoo and Pretty Little Thing, as well as various make-up brands.
She still cringes at the term “social influencer”, but says that she wishes there were more people like her when she was growing up.
“So many people with disabilities have told me that I’ve given them the confidence, not only to embrace their disability, but to also pursue their own love of make-up,” she says.
Tess is one of a growing number of disabled influencers who work with Martyn Sibley and his digital marketing agency Purple Goat, which he launched at the beginning of lockdown last year.
Martyn, who was also born with SMA, started the agency as part of his mission for a fully inclusive world.
“I believe by helping big businesses make more profit through including disabled consumers via disabled influencers, we’ll get true inclusion quicker,” he says. “With this model it’s a win-win for everyone.”
Purple Goat has worked with more than 75 influencers so far, but Martyn is keen to point out that they’re not a talent agency with people on their books.
“We work for the client and find the right influencer for each campaign,” he explains.
Taking the plunge
Around 14.1 million people in the UK have some sort of disability, and with those sorts of numbers comes serious spending power. According to disability charity Scope, the so-called “purple pound” is worth approximately £273bn every year.
But while disabled people make up around 22% of the UK population, this is not reflected when it comes to advertising. Up-to-date figures are hard to come by, but research from Lloyds Banking Group in 2016 showed that disabled people featured in just 0.06% of advertising.
This was the main driver behind Martyn launching Purple Goat. He thinks the world of marketing and advertising is now becoming a lot more socially aware, and is ready for disruption.
“I believe it’s partly the way public opinion has improved around diversity and inclusion,” he says. “Brands have been fearful of getting disability wrong, but they’re now fearful of being called out for doing nothing.”
Tess has certainly seen a pick-up in social media work. Up until last year, it was something she did as a sideline, but towards the end of 2020 she took the plunge to become a full-time influencer, and now works with an agent to manage her workload.
It wasn’t as easy as people may think, she says. “You can’t just wake up one day and decide you want to become a social influencer.”
‘Demanding to be seen’
Last year London-based luxury shoe brand Kurt Geiger started working with Northern Irish amputee model and influencer Bernadette Hagans.
The company’s chief executive, Neil Clifford, thinks that the rise in disabled influencers is down to the public’s change of mood.
“The boom in social media has given a voice to those who have previously been under-represented in the public eye and they are, quite rightly, demanding to be seen and heard,” he says. “People expect businesses to utilize their influence to counter inequality and many brands are reacting to this need.”
Twenty-six-year-old Pippa Stacey from York works in the charity sector, and blogs about living with chronic illness. Pippa, who lives with myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome, has also worked with Purple Goat doing social media campaigns for brands such as Tesco.
“Influencer marketing is about so much more than just the hard sell. It’s about supporting a positive image of the brand and their values, of which inclusivity should be central in this day and age,” she says.
Inclusivity on the part of big brands shouldn’t just be a tick box exercise, something they feel compelled to do to avoid criticism, she says.
“Having an ongoing relationship with disabled influencers, and taking the time to understand their platform. and their audience can help brands construct the most effective campaigns in a socially conscious way.”
Hollywood plays a massive part in shaping our understanding of different groups and helps us gain insight into worlds and cultures we may never have been able to on our own. The movies and TV series that flood our screens are more than just entertainment; they’re education. But with great power and influence comes great responsibility as there’s always the danger of misrepresentation.
Over the years, Hollywood has faced backlash from several communities and social movements about the issue of misrepresentation and underrepresentation. Groups identifying with Black Lives Matter, LGBTQ, the MeToo Movement, and protests like the OscarsSoWhite campaign come to mind.
People with disabilities, moreover racialized groups with disabilities, should also be at the forefront of this conversation, but they aren’t. This is a huge problem, especially considering that about a billion people live with some form of disability. In the U.S., one in five people have a disability, and for adults specifically, the disability count is about 26 percent, according to the CDC—roughly one in four adults.
“It’s almost impossible not to find people living with disabilities in any of these communities that feel let down by the entertainment industry’s depiction of their reality,” he said. “The discussion about proper inclusion and authentic depictions of a disabled person’s circumstances can only bode well for these groups and the entire industry as a whole.”
Disability isn’t new to the entertainment industry
Hollywood and the wider entertainment industry have many popular figures who are on the disability spectrum. Michael J. Fox has been diagnosed with Parkinson’s disease, Jim Carrey has talked about having ADHD, and Billie Eilish was diagnosed with Tourette Syndrome as a child, to mention a few.
Many of Hollywood’s big names have also brought awareness to various disabilities by talking about their condition, advocating for better understanding and acceptance of people with disabilities, or donating to their cause. The industry has also taken steps to shine a light on disabilities by making movies and TV productions focused on varying disabilities, or casting lead characters as people with disabilities.
The problem here is that the bigger picture still tells a story of underrepresentation and a lack of inclusion with only 3.5 percent of series regular characters being disabled in 2020, according to GLAAD. Another study found that this number was reasonably higher in 2018—12 per cent higher in fact—but that the majority of these characters were portrayed negatively.
There have been reports over the years of actors, writers, and other workers in entertainment losing their jobs or not being considered for a position due to disability-related issues. So while some of the silver screen’s most loved names play the roles of disabled characters and win awards and recognitions, the disabled community isn’t seeing any reasonable increase in inclusion and accessibility in the industry. In fact, about 95 per cent of characters with disabilities in Hollywood’s top shows are played by able-bodied actors, and during the 2019 Oscars, only two out of the 61 nominees and 27 winners that played disabled characters were actually disabled.
This gives credence to the concern of inauthentic portrayals of any given disability or disabled person. “It has never made sense to me that disabled characters in our shows and movies are played by people who have no disability.” Musab opines, “You can’t give what you don’t have, not optimally anyway. The way I see it, it’s like getting Cameron Diaz to play Harriet Tubman. No matter how pure her intentions and commitment to deliver on the role, she simply won’t be able to do it justice. It is an indictment of the abilities of disabled artists.”
The real focus is not only on the disability of the Hollywood spectrum but on the lack of inclusivity for racialized groups within the disabled community. The stories of their lives may have been voiced on several platforms but never from the eyes of the Hollywood industry. This is an important recognition for racialized groups within the disabled community, to not only be recognized but seen through a macro spectrum of representations.
On the outside, it looks like your typical Lakewood apartment.
Fourteen units close to shopping and restaurants, right in the heart of the city.
But on the inside, four apartments have been in the works for nearly two years.
They’re called TryTech – short for “try technology.”
A partnership between the nonprofit North Coast Community Homes and the Cuyahoga County Board of Developmental Disabilities.
Kelly Petty is the CEO at CCBDD.
“We might see people with cerebral palsy, autism, Down syndrome, a whole variety of disabilities that qualify for our services,” she explained.
And TryTech is the first of its kind in the country.
Smart apartments tricked out with the latest in technology to make independent living for those with developmental disabilities attainable.
Voice activated tech, smart fridges and doorbells, an iPad with access to a virtual support person at the touch of a button, just to name a few things.
Being in an integrated building sets it apart even more.
“People who come to live in the TryTech apartments will be living in the same building as people without disabilities and that is unique and very exciting,” Petty said.
Chris West is the CEO of North Coast Community Homes, which has helped build and design hundreds of homes for those with disabilities in Northeast Ohio. Their partnership with CCBDD stretches nearly four decades.
“This really allows them to be in a community that’s inclusive,” West said.
The apartments will be available to four individuals at a time, on a trial basis —they can test it out for a weekend or even up to a few weeks.
From there, they can decide which parts of the technology are most helpful, so that can be integrated in a more permanent home for them.
Grace Gorton was one of the first to test it out.
“It feels very empowering as a deaf person and deaf single woman,” Gorton said, adding that she’s proud of herself for getting out of her comfort zone. “I want to work on my self confidence and my ability to live on my own.”
“It really allow them to show everybody they can live on their own. We know that they can,” West said.
And this project lets them prove it — to themselves, to their families, and to their support systems.
Click here to read the full article on News 5 Cleveland.
Quaden Bayles, an indigenous Australian boy who won the support of celebrities and well-wishers around the globe after being bullied because of his disability, has landed a role in the new “Mad Max” movie.Oscar-winning director George Miller has cast the now 11-year-old in a small role in the movie “Furiosa,” a prequel to his 2015 post-apocalyptic blockbuster “Mad Max: Fury Road.” Miller revealed in an interview with the Sydney Morning Herald’s Good Weekend magazine, published Saturday, that he was moved to put Bayles on the big screen after watching the distressing video his mother shared of him in February 2020.
The Queensland boy, born with a type of dwarfism known as achondroplasia, is already scheduled to appear alongside Idris Elba and Tilda Swinton in Miller’s next film, “Three Thousand Years of Longing.” “It was good for us and it was good for him,” Miller told the Sydney Morning Herald. “And he did such a good job that he’s got a small role in Furiosa.”
In the 2020 viral video clip, Bayles is shown crying uncontrollably in the back of his mother’s car as he asks for a knife to kill himself.”This is what bullying does,” his mother, Yarraka Bayles, said in the video, livestreamed on Facebook to raise awareness of the impact of bullying. “Can you please educate your children, your families, your friends?”
For people with multiple sclerosis (MS) and other disabilities, getting dressed can be challenging. Navigating buttons or zippers can feel difficult or even some fabrics feel uncomfortable. A lot of adaptive clothing — garments designed to be functional for people with disabilities — focuses heavily on the function. Tommy Hilfiger hoped to change that by offering a line that’s functional but looks as fashionable as his other clothing lines.
“Nobody was doing it and when the idea came to me, I thought it was a natural for us because we are a very inclusive brand and we’re really proud to be leading the way now for adaptive fashion globally,” Tommy Hilfiger told TODAY. “A lot of this has to do with my personal experience as a result of having children on the autistic spectrum and I have firsthand experiencing as far as knowing what their needs are … and understanding the fact that they too would like to be like their peers.”In 2016, Tommy Hilfiger released its line of adaptive clothing for children and in the next year adult clothing was available “as a result of the great response.”
“They need it to function. But they also want to look good and for us it took a bit of studying and due diligence to try to figure out specifically what they would need in terms of function,” he explained. “We were able to use the same design as our mainstream collection but add innovative modifications and make dress easier.”
The brand uses a variety of closures, such as Velcro, magnets and hoop and loop closures, that can be easier to manage. While Hilfiger has personal experience with family members who have disabilities, including his sister who had MS, the company worked with people with disabilities to understand what works best for them.
“We asked a lot of people with disabilities what their preferences would be and we took it very seriously,” he said. “I wanted it to really come out of the gates as being a great collection and it took us quite a while to develop that.”
After people wear the clothes, they might share their thoughts and Hilfiger said that helps them continue to improve upon the design.
“The feedback really helps us to drive the business and the changes,” he said.
In the past, Hilfiger has supported Race to Erase MS, co-founded by Nancy Davis. Her organization has raised money to help drug development for MS. When she was diagnosed 30 years ago, she and others had few options for treatment.
“I had been recently told that I would never walk again and I would never have much freedom in my life and I had a really impossible disease that (doctors) would never find any treatment or cures for, but I decided I wanted to start my own foundation,” she told TODAY. “There’s now 22 drugs on the market that have FDA approval, which is nothing short of a miracle, and it was because of so many people like Tommy Hilfiger and all the different supporters.”
When Davis was diagnosed, she had three young children felt determined to have a different future. She said most people are diagnosed between 20 and 40 when they hit “that stride in their life.”
“I so badly wanted to live my life and had so many dreams and aspirations and they told me the most that I could do in my life is operate the remote control to my TV set,” she said. “It’s scary. It’s the unknown. Today there’s so much hope.”
Even with new medications, though, dressing can still be a challenge for people with MS. Davis recently met with Selma Blair, whom Race to Erase MS honored in the past, and the actress admitted that it took her about 40 minutes to get dressed.
“When you look at how hard it is to get up in the morning and put on clothes it’s really amazing that Tommy was so forward thinking in that he came up with this line that looks beautiful,” she said. “But it makes it very easy for that person who can’t get dressed.”
