Reflecting on Accessibility, Ableism, and Chronic Illness During Pride Month

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Accessibility poster for phighting words

By Mike Naple, Pulmonary Hypertension News

Pride Month, observed each June, is a time to celebrate LGBTQ history, community, and life through events and parades. Curiously enough, I marched in my first Pride parade years before I had the courage to come out and live authentically. While I think about that experience in San Francisco often, for many reasons, I’ve only attended a few Pride events since I was diagnosed with pulmonary hypertension.

Pride can be wonderful for many people in the LGBTQ community; however, that is not always the case for queer people who are disabled or chronically ill. Pride events, including parades, are not always accessible or inclusive, creating barriers to full participation for people who also wish to celebrate this month. Whether the activity is walking in a parade, observing as a spectator, or joining the fun at a party or other celebration, these all happen in venues that can be inaccessible.

Making Pride more inclusive of those of us with disabilities and chronic illnesses begins at the planning phase. Organizers should think about parade routes, parking, seating options, and amplified sound through the lens of how to make the event accessible to all.

For me and others living with PH, hot weather can trigger or worsen symptoms, and June is when the summer heat starts to turn up. It is harder for me to breathe if I’m outdoors when the thermometer reads 90 F. If I wanted to attend a Pride parade or event, I would consider what accommodations are being provided to help prevent heat exhaustion. Supplying things like shaded seating that’s easily accessible, fans, and bottled water would help me decide whether or not to participate.

Last year, we all had to make adjustments to allow for quarantining and social distancing protocols to limit exposure to COVID-19. Work, school, family reunions, holiday dinners, and many other events took place virtually instead of in person. This dynamic forced many businesses and event organizers — everyone from restaurant and bookstore owners, to local bands playing to their fans from their living rooms, to those organizing Pride activities — to get creative to engage their audiences.

One positive thing to emerge from the pandemic is the recognition that we can make events accessible by going virtual, and they will be just as engaging and successful. Virtual events also give people options for how they choose to participate. It doesn’t have to be just parades and crowded, in-person events.

Still, accessibility doesn’t always mean inclusivity. When Pride messages herald themes of diversity and acceptance of differences, I often question my place within the community because of my own issues with body image and experiences with internal and external ableism.

A portable oxygen concentrator is a mobility device I use as part of my treatment plan to improve my quality of life with PH. If I want to participate in a march, I bring it. I have worn my oxygen concentrator to climate and advocacy marches before. But I couldn’t picture myself wearing it to march in a Pride parade because of complicated feelings related to body positivity and not conforming to mainstream standards in the LGBTQ community.

Two years after my diagnosis, I attended a Pride event to listen to a presentation on healthcare data for older queer Americans. I spoke up during the Q&A session to inquire about care for older members of the LGBTQ community who are disabled or chronically ill. This spectrum of our community often gets lost, or considered as an afterthought, and the presentation was mostly silent on disability until I gave voice to that absence.

I think about life expectancy and pulmonary hypertension a lot. With a mix of hope and trepidation, I look ahead to growing old with my partner. I also worry about the kind of ableism and prejudice we could face should my PH become more severe down the road and we need to make some tough decisions about my healthcare.

Click here to read the full article on Pulmonary Hypertension News.

FREE Online Class Series on Fighting Diabetes with Food

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group of women enjoying plant-based foods together

Learn how plant-based foods can help improve blood sugar, lose weight, control blood pressure, and more at a free online class series!

Join doctors, dietitians, nurses, chefs, health coaches, people who have reversed their diabetes, and other experts for ongoing live and on-demand classes.
 
 

Topics include:

🍅 A Nutritional Approach for Diabetes

🍅 Grocery Shopping and Recipes for Success

🍅 Maintaining a Healthy Heart, Eyes, Nerves, and Kidneys

🍅 Keeping Up Success in the Long Run

🍅 And more!

Live classes are every Tuesday for eight weeks from 3-to-4 p.m. ET (12-to-1 p.m. PT) starting Sept. 7th.

Register today: Fight Diabetes With Food (pcrm.org) 

Val Kilmer On Surviving Throat Cancer: ‘I Want to Share My Story More Than Ever’

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Val Kilmer On Surviving Throat Cancer: 'I Want to Share My Story More Than Ever'

By Kara Warner, People

The film is co-directed by Leo Scott and Ting Poo and produced by Kilmer, his son Jack, 26, and his daughter Mercedes, 29. Scott, Poo, Jack and Mercedes all spoke to PEOPLE in this week’s issue.

“Now that it’s more difficult to speak, I want to tell my story more than ever,” Kilmer says in the documentary, which is an intimate look at the Top Gun star’s personal and professional life, including his cancer battle and recovery.

Val received a standing ovation at the Cannes Film Festival and features a treasure trove of Kilmer’s personal video footage from behind the scenes of his most popular films, along with vulnerable, candid moments from the star about coping with his physical limitations in the documentary. His son Jack also reads Kilmer’s words to narrate much of the film.

“I obviously am sounding much worse than I feel,” Kilmer says in the film, his voice thin and raspy.

“I can’t speak without plugging this hole [in his throat]. You have to make the choice to breathe or to eat,” he adds, and now has his meals through a feeding tube. “It’s an obstacle that is very present with whoever sees me.”

Filmmakers Scott and Poo tell PEOPLE they were inspired to pursue making the documentary with Kilmer after learning about the actor’s extensive personal film archive and getting to know the man himself.

“We approached him three years ago,” says Scott. “I’d worked with him on his Cinema Twain project and when he couldn’t tour the play Citizen Twain, he was touring a film of the play, so I was working with him on that and some other projects too, archiving his footage.”

Poo respects how open Kilmer was to collaborating with them and showing all facets of his personal and professional life.

“He doesn’t have the vanity that you would expect from someone of his fame and celebrity. There was never any of that kind of artifice or protection that people who are really famous have to put up around themselves,” she says. “It’s humbling to be around that.”

Click here to read the full article on People.

Paralympian Sophia Herzog has a mental health coach and psychologist ‘to get me prepared and healthy’

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Sophia Herzog smiling at the camera

By Cindy Augustine, Yahoo! Life

The Unwind is Yahoo Life’s well-being series in which experts, influencers and celebrities share their approaches to wellness and mental health, from self-care rituals to setting healthy boundaries to the mantras that keep them afloat.

Sophia Herzog may be a Paralympian bound for Tokyo and determined to win a medal in swimming, but in many ways, she’s a lot like her 20-something peers: focused on her future. The Colorado native, who was born with a form of dwarfism, has been steadily training at the Olympic Training Center in Colorado Springs, prepping for the Tokyo games — but she knows she can’t swim forever.

When Herzog, 24, isn’t training or obsessing over her dog, Odie, she’s been thinking about what lies ahead after swimming — and choosing to make her education a priority. As a graduate from DeVry University, an official education provider of Team USA, Herzog was able to get her degree on her own terms (mostly virtual), and showed off her ability to juggle her athletic training and career training.

Herzog will be competing in freestyle, breaststroke and butterfly heats as the Paralympic Games get underway on Tuesday. Before taking off for Tokyo, the athlete caught up with Yahoo Life and shared how she stays focused and mentally prepared.

How do you approach taking care of your mental health?

We saw how much pressure athletes are under from the [Tokyo] Olympics, and I think it’s really important. I have a mental health coach and a psychologist that I work with almost weekly to get me prepared and healthy, just like my gym coach and swim coach. It’s nice to shed a light on the pressure — Olympic superhero athletes are just like every other human.

Aside from being in the pool, what else brings you joy?

We adopted a dog last June, and he’s been [helpful] in disconnecting from swimming. Getting outside and watching him be joyous over the littlest things has been a huge help for me. He’s now my child [laughs], Odie. I’m only 24 years old now and this is what I’ve done professionally for 12 years. I haven’t really experienced life outside of swimming and I’m looking forward to finding what brings me joy — besides my dog.

Click here to read the full article Yahoo! Life.

Midlothian boy born with rare condition gets a special escort on his first day of kindergarten

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Midlothian boy born with rare condition gets a special escort on his first day of kindergarten Batman and Captain Marvel greeted 5-year-old Michael Denison outside his house Monday morning. He got a look inside a police squad car and fire engine before taking off for his first day of school.

By Lori Brown and Shannon Murray, Fox LA

MIDLOTHIAN, Texas – Midlothian police officers and firefighters helped make the first day of kindergarten special for a little boy who is facing some challenges this school year.

Batman and Captain Marvel greeted 5-year-old Michael Denison outside his house Monday morning. He got a look inside a police squad car and fire engine before taking off for his first day of school.

Then at Mountain Peak Elementary, classmates and teachers gave him a warm welcome.

Last week, Michael’s mom, Brittany Denison, made a plea on social media for kids to be kind and asked parents to educate their children about people who are different.

Michael was born with a rare condition called Treacher Collins syndrome. All of the bones in the lower half of his face are smaller than they should be just like the boy Auggie in the movie “Wonder.”

“We’ve had multiple instances where people have used the words scary, monster or weird and that’s really uncomfortable,” she said. “When you’re in a room with Michael for two minutes you understand immediately that he is just the same as every other kid.”

Midlothian’s fire chief said as the story spread on social media, his firefighters knew they wanted to do something to help. So they reached out to the family and school to coordinate the special escort.

“My name is Dale, I am the fire chief,” Dale McCaskill told Michael. “We heard you might be a little nervous going to school your first day so we are going to give you a ride on the fire truck.”

Michael’s mom said when she made that plea on social media she had no idea it would lead to so much support in both the community and from people all across the world.

“To see him smile like that, that was once in a lifetime. That was amazing, unforgettable,” she said after dropping him off for his first day. “He’s an extraordinary kid so I wanted him to have an ordinary year. But I can’t imagine this will be an ordinary year for him anymore. The welcoming experience of the kids being outside, the waves and the smiles, that’s what you want for your kid to be welcomed with open arms.”

She hopes that it creates an even bigger conversation for all families and all students about accepting each other despite differences and standing up for one another.

Click here to read the full article on Fox La.

Photo of Braille-etched Railing at Italian Castle Describing Stunning View Goes Viral

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Braille-etched Railing at Italian Castle

By News 18

Often the internet tends to shine a light on something beautiful and fascinating and a recent photo of a railing on a window in a castle in Italy has gone viral. And it has happened for a good enough reason. Sitting atop a hill that overlooks the Italian city of Naples is the Castel Sant’Elmo (St Elmo Castle) which is a popular tourist haunt.

Hundreds walk up to the top of the castle to enjoy the view but there is yet another attraction on display in the castle. A 92-foot-long piece of stainless steel is attached to the wall fence of the castle of one of its large sized windows and it has a poetic description of the view in Braille. The unique railing was installed by artist Paolo Puddu in 2015 and titled ‘Follow the Shape’ and has been a permanent fixture at the castle since 2017, a report on Ozy.com said. The art had won the fifth edition of the ‘A Work For the Castle’ contest.

Visitors are encouraged to feel the installation wherein they run their hands on the rail and those who can read the Braille script can ‘follow the shape’ on the railing to read the verses from Italian author Giuseppe de Lorenzo’s ‘La terra e l’uomo’ or the ‘The Land and the Man’.

Click here to read the full article on News 18.

7 Ways Meditation Can Actually Change The Brain

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Animated photo of the human brain. meditation really does produce measurable changes in our most important organ.

By Alice G. Walton, Forbes

The meditation-and-the-brain research has been rolling in steadily for a number of years now, with new studies coming out just about every week to illustrate some new benefit of meditation. Or, rather, some ancient benefit that is just now being confirmed with fMRI or EEG. The practice appears to have an amazing variety of neurological benefits – from changes in grey matter volume to reduced activity in the “me” centers of the brain to enhanced connectivity between brain regions. Below are some of the most exciting studies to come out in the last few years and show that meditation really does produce measurable changes in our most important organ. Skeptics, of course, may ask what good are a few brain changes if the psychological effects aren’t simultaneously being illustrated? Luckily, there’s good evidence for those as well, with studies reporting that meditation helps relieve our subjective levels of anxiety and depression, and improve attention, concentration, and overall psychological well-being.

Meditation Helps Preserve the Aging Brain

Last week, a study from UCLA found that long-term meditators had better-preserved brains than non-meditators as they aged. Participants who’d been meditating for an average of 20 years had more grey matter volume throughout the brain — although older meditators still had some volume loss compared to younger meditators, it wasn’t as pronounced as the non-meditators. “We expected rather small and distinct effects located in some of the regions that had previously been associated with meditating,” said study author Florian Kurth. “Instead, what we actually observed was a widespread effect of meditation that encompassed regions throughout the entire brain.”

Meditation Reduces Activity in the Brain’s “Me Center”

One of the most interesting studies in the last few years, carried out at Yale University, found that mindfulness meditation decreases activity in the default mode network (DMN), the brain network responsible for mind-wandering and self-referential thoughts – a.k.a., “monkey mind.” The DMN is “on” or active when we’re not thinking about anything in particular, when our minds are just wandering from thought to thought. Since mind-wandering is typically associated with being less happy, ruminating, and worrying about the past and future, it’s the goal for many people to dial it down. Several studies have shown that meditation, through its quieting effect on the DMN, appears to do just this. And even when the mind does start to wander, because of the new connections that form, meditators are better at snapping back out of it.

Its Effects Rival Antidepressants for Depression, Anxiety

A review study last year at Johns Hopkins looked at the relationship between mindfulness meditation and its ability to reduce symptoms of depression, anxiety, and pain. Researcher Madhav Goyal and his team found that the effect size of meditation was moderate, at 0.3. If this sounds low, keep in mind that the effect size for antidepressants is also 0.3, which makes the effect of meditation sound pretty good. Meditation is, after all an active form of brain training. “A lot of people have this idea that meditation means sitting down and doing nothing,” says Goyal. “But that’s not true. Meditation is an active training of the mind to increase awareness, and different meditation programs approach this in different ways.” Meditation isn’t a magic bullet for depression, as no treatment is, but it’s one of the tools that may help manage symptoms.

Meditation May Lead to Volume Changes in Key Areas of the Brain

In 2011, Sara Lazar and her team at Harvard found that mindfulness meditation can actually change the structure of the brain: Eight weeks of Mindfulness-Based Stress Reduction (MBSR) was found to increase cortical thickness in the hippocampus, which governs learning and memory, and in certain areas of the brain that play roles in emotion regulation and self-referential processing. There were also decreases in brain cell volume in the amygdala, which is responsible for fear, anxiety, and stress – and these changes matched the participants’ self-reports of their stress levels, indicating that meditation not only changes the brain, but it changes our subjective perception and feelings as well. In fact, a follow-up study by Lazar’s team found that after meditation training, changes in brain areas linked to mood and arousal were also linked to improvements in how participants said they felt — i.e., their psychological well-being. So for anyone who says that activated blobs in the brain don’t necessarily mean anything, our subjective experience – improved mood and well-being – does indeed seem to be shifted through meditation as well.

Just a Few Days of Training Improves Concentration and Attention

Having problems concentrating isn’t just a kid thing – it affects millions of grown-ups as well, with an ADD diagnosis or not. Interestingly but not surprisingly, one of the central benefits of meditation is that it improves attention and concentration: One recent study found that just a couple of weeks of meditation training helped people’s focus and memory during the verbal reasoning section of the GRE. In fact, the increase in score was equivalent to 16 percentile points, which is nothing to sneeze at. Since the strong focus of attention (on an object, idea, or activity) is one of the central aims of meditation, it’s not so surprising that meditation should help people’s cognitive skills on the job, too – but it’s nice to have science confirm it. And everyone can use a little extra assistance on standardized tests.

Meditation Reduces Anxiety — and Social Anxiety

A lot of people start meditating for its benefits in stress reduction, and there’s lots of good evidence to support this rationale. There’s a whole newer sub-genre of meditation, mentioned earlier, called Mindfulness-Based Stress Reduction (MBSR), developed by Jon Kabat-Zinn at the University of Massachusetts’ Center for Mindfulness (now available all over the country), that aims to reduce a person’s stress level, physically and mentally. Studies have shown its benefits in reducing anxiety, even years after the initial 8-week course. Research has also shown that mindfulness meditation, in contrast to attending to the breath only, can reduce anxiety – and that these changes seem to be mediated through the brain regions associated with those self-referential (“me-centered”) thoughts. Mindfulness meditation has also been shown to help people with social anxiety disorder: a Stanford University team found that MBSR brought about changes in brain regions involved in attention, as well as relief from symptoms of social anxiety.

Click here to read the full article on Forbes.

Homeless Man With Arthritic Hands Rebuilds His Life After Discovering Keyboard App For Easier Typing

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Typewise hexagonal keyboard with blue keys in five rows

By sam.baldwin@typewise.app

A formerly homeless man with a severely deformed hands has been able to rebuild his life after discovering a new way to communicate, thanks to a novel hexagonal smartphone keyboard made in Switzerland.

Russ Miller, 36, from Ohio, was first diagnosed with the autoimmune disease rheumatoid arthritis when he was just 26. The condition attacks the body’s joints, making it progressively more difficult for him to do everyday tasks.

“My hands are deformed. They’re not shaped properly and I can’t bend them like everyone else can. Recently my thumb has stopped working, so I can’t bend it,” said Miller in a letter to the company. “I can no longer use normal computer keyboards and it’s hard for me to even hold a pen anymore.”

Russ’ condition led to a downward spiral which resulted in him living on the streets in Florida for 4 years—but in 2018, he started trying to turn his life around.

“I was trying to get help and get myself out of my situation. I had a phone, but I struggled typing on keyboards… So I started looking for alternative smartphone keyboards that might enable me to type again. I found Typewise by accident.”

Russ attributes Typewise smartphone keyboard with enabling him to “get his life back” by empowering him to communicate with people, and therefore get help, get an apartment and even get a job:

“I was able to communicate a lot better than talking, because my voice is kind of monotone so people don’t understand me very well. And because I was able to start typing on my phone again, I was able to use social media to reach out to an organization that helps people with disabilities.”

It’s the hexagonal layout of the keyboard that Russ finds a whole lot easier. “I can move my fingers around and not mess up as often.”

“Now I have a part-time job where I take care of dogs and cats; Tuesdays and Thursdays. I can’t work full time, because of my physical issues but at least I have something to do and something to look forward to.”

The company making the smartphone app, which has a popularity rating of 4.5 stars, had been unaware that their unique keyboard design could help people with reduced dexterity, until they received Russ’s letter.

Continue on to The Good News Network to read the complete original article.

Photo Credit: Typewise

How to Manage Anxiety as We Re-Enter the World

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Business man with face mask works on laptop computer

By Angie Snyder, PsyD, Wellness Advisor

Since the pandemic, all of our lives have changed abruptly. For many, this sudden change led to life circumstances that were vastly different than how we’d lived before.

People across the globe have experienced great challenges including loss, grief, fear, stress, economic destabilization and the psychological impact of monotony.

Despite all of the difficulties, some have benefitted and enjoyed the changed circumstances – including a slower pace of life, more time with family and loved ones at home, new hobbies, less commuting, more sleep and fewer demands of planning and decision making.

Now that restrictions are easing and people are beginning to return to work and school, there is a whole new set of anxieties about what the near-future holds.

For example, those who struggled with social anxiety before the pandemic have had less opportunity to practice engaging with others, which has only increased their social anxiety. People’s anxieties about re-entry include, but are not limited to:

  • Fear of becoming sick with coronavirus, even if they’ve been vaccinated;
  • Self-consciousness and/or fear of engaging in-person with people;
  • Fear of being in public;
  • Uncertainty from a shifting of relationships and concern about who remains their friend;
  • Overwhelm with a flood of personal and professional decisions that were on hold, and
  • Worry about returning to an unhealthy, overly-scheduled life.

Fortunately, most of us now have opportunities to move more slowly and with more say in how we operate with the changes to come.

The following three steps might help you determine what is your unique, best path forward:

Reflect: Assess What You Want to Keep/Let Go – Give yourself time to reflect upon how you want to proceed in the coming months. Journaling and conversations with a trusted friend, colleague, family member or therapist can help you determine what you value and what you want to prioritize in your days. Ask yourself and answer, “What have I enjoyed and valued since the beginning of the pandemic, and what of this do I want to maintain?” Perhaps you want to ensure you continue spending time playing the guitar, baking, painting, or enjoying whatever hobby you cultivated during the pandemic. You might also want to continue monthly Zoom meetings with friends or family in another country or state. Maybe you want to ensure that you continue to have a couple of unstructured hours on the weekend or weeknights to relax. Then, consider and answer the following – “What do I want to let go of that did not serve me well during the pandemic?” Perhaps you have been eating or drinking too much or spending too much time on the computer.

Also, consider writing down what you know you need or want to do, but are scared to do – such as socializing in-person, going back to the lab, or traveling by plane. Acknowledge what you’re afraid of or nervous about with non-judgmental acceptance.

Act: One Step at a Time – Once you’ve taken time to reflect, you can begin to think about what you want to commit to personally and professionally. Even if you’re anxious about that activity or responsibility, gently encourage yourself to take a first step. Anxiety is fueled by avoidance, and the longer one avoids something, the scarier it seems. So do go forward and make plans to meet in-person with a friend, but don’t overextend yourself with too many commitments too soon. Going slowly is also important to help you titrate discomfort. While some discomfort is okay and helps to rebuild the “muscle” of returning to work in-person, commuting or socializing, too much anxiety can inhibit growth and thus thwart your efforts. Enjoy the luxury of choice where you have it, and move slowly and intentionally forward toward your goals and priorities.

Communicate: Your Feelings and Boundaries – When you know what you want to do and what you don’t want to do, you can more clearly communicate this with your friends and colleagues. Practice assertively sharing what you are most comfortable doing for your safety or mental well-being. If you are nervous about returning to the lab, consider speaking to your PI to learn what protocols are in place to ensure a safe work environment and what choices you have to balance work in the lab with work from home. If people invite you to a large gathering, and you prefer to start with a smaller group or an activity in a less crowded environment, let them know that you want to see them, and articulate options that would be most comfortable to you.

Overall, be gentle with yourself as yet again you adapt to change; and, remember to take care of yourself and reach out for support as needed.

Source: National Institutes of Health (oitecareersblog.od.nih.gov)

Biden admin says ‘long COVID-19’ could qualify as a disability

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Biden pictured with the american flag. The Biden administration on Monday released new guidance on how to support those experiencing long-term symptoms of COVID-19 as part of a broader effort to recognize the 31st anniversary of the Americans with Disabilities Act.

BY Morgan Chalfant, The Hill

The Biden administration on Monday released new guidance on how to support those experiencing long-term symptoms of COVID-19 as part of a broader effort to recognize the 31st anniversary of the Americans with Disabilities Act.

The departments of Health and Human Services (HHS) and Justice rolled out guidance making clear that symptoms of “long COVID-19” could qualify as a disability under the federal civil rights law.

The guidance makes clear that long COVID-19 is not automatically a disability and that an “individualized assessment” is necessary to determine whether a person’s long-term symptoms or condition “substantially limits a major life activity.”

The Administration for Community Living at HHS also released a guide outlining services provided by community-based organizations to help individuals experiencing long-term symptoms after contracting COVID-19.

Additionally, the Education Department released a resource document including information about the responsibilities of schools and public agencies when it comes to providing services and “reasonable modifications” for children and students for whom long-term COVID-19 symptoms qualify as a disability.

Finally, the Labor Department launched a new webpage that includes information and links for workers experiencing long COVID-19, like information on employee benefits.

Most individuals who contract COVID-19 recover and see symptoms dissipate within a few weeks of experiencing effects from the virus. However, some individuals who have contracted the coronavirus have reported experiencing new or ongoing symptoms a month or more after testing positive for the virus.

Research released by the nonprofit FAIR Health last month found that a quarter of people who had COVID-19 sought care for new medical problems at least a month after being diagnosed with the virus.

Replay Video
The Biden administration on Monday released new guidance on how to support those experiencing long-term symptoms of COVID-19 as part of a broader effort to recognize the 31st anniversary of the Americans with Disabilities Act.

The departments of Health and Human Services (HHS) and Justice rolled out guidance making clear that symptoms of “long COVID-19” could qualify as a disability under the federal civil rights law.

The guidance makes clear that long COVID-19 is not automatically a disability and that an “individualized assessment” is necessary to determine whether a person’s long-term symptoms or condition “substantially limits a major life activity.”

The Administration for Community Living at HHS also released a guide outlining services provided by community-based organizations to help individuals experiencing long-term symptoms after contracting COVID-19.

Additionally, the Education Department released a resource document including information about the responsibilities of schools and public agencies when it comes to providing services and “reasonable modifications” for children and students for whom long-term COVID-19 symptoms qualify as a disability.

Finally, the Labor Department launched a new webpage that includes information and links for workers experiencing long COVID-19, like information on employee benefits.

Most individuals who contract COVID-19 recover and see symptoms dissipate within a few weeks of experiencing effects from the virus. However, some individuals who have contracted the coronavirus have reported experiencing new or ongoing symptoms a month or more after testing positive for the virus.

Research released by the nonprofit FAIR Health last month found that a quarter of people who had COVID-19 sought care for new medical problems at least a month after being diagnosed with the virus.

Biden celebrates anniversary of Americans with Disabilities Act
French parliament approves COVID-19 passes for restaurants, domestic…
The White House announced the new resources on Monday morning, before Biden and Vice President Harris were slated to deliver remarks in the White House Rose Garden commemorating the 31st anniversary of the Americans with Disabilities Act.

Then-President George H.W. Bush signed the sweeping civil rights act into law in 1990. Biden, who at the time was a Democratic senator representing Delaware, co-sponsored the legislation, which prohibits discrimination against individuals with disabilities in a wide range of settings, including places of employment, schools, community living and transportation.

Click here to read the full article on The Hill.

NYC Ballet hosts disability-friendly workshop for young people

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Contributed participants in Saturday's Workshop for young people with disabilities

By Allison Collins, The Daily Star

New York City Ballet dancers raised the barre for young people with disabilities during a Saturday, July 17 workshop hosted by the company, Saratoga Performing Arts Center at the National Museum of Dance and the Cerebral Palsy Association of New York.

Dr. Joseph Dutkowsky, Pediatric Orthopedist with Bassett Healthcare Network, has been involved with such New York City Ballet workshops since their inception roughly seven years ago, at which time he worked part time downstate. The workshops began, Dutkowsky noted, after a mother of child with cerebral palsy approached the company asking for disability-friendly instruction.

Today, Dutkowsky said, the annual NYCB workshop at SPAC is one of “10 or 12” held “all year long,” though Saturday’s marked the first in-person workshop since the COVID-19 pandemic. The event included roughly 20 young people from 4 through 22 and was led by NYCB corps dancers Meaghan Dutton-O’Hara and Davide Riccardo, who demonstrated warm-ups and choreography inspired by the company’s A Midsummer Night’s Dream. The one-hour workshop was free to participants and included tickets to day-of SPAC performances.

Dutkowsky credited the workshops’ impact with ensuring their continuation.

“I thought, ‘OK, this might go on for a year or two,’ but the ballet has absolutely gone head over heels for this and totally fallen in love,” he said. “The dancers fight over doing these classes. These are professional dancers used to always being judged — on the stage, in rehearsal or in the mirror — and it can be a very self-absorbing life. But these kids don’t judge them; these kids give them a respite where they don’t have to be perfect … and that’s why they crave doing these classes. The love and care they have for these kids is absolutely genuine, and that’s why it works.”

Such rewards, Dutkowsky said, are reciprocal.

“It’s a very inclusive place and a very welcoming place,” he said. “It’s strength and diversity, because you have these dancers with the greatest control of their bodies … and some kids who’ve never taken a single step without assistance, but where some people see divergence, I see glorious convergence. There’s something wonderful when they come together, and each will tell you the other gives more than they receive.

“Art, in this case dance, is uniquely human,” Dutkowsky continued. “It’s part of us, and people with disabilities have the same desires for love and intimacy and they get angry and sad; art helps to bring that out. With this, they’re not just passive observers, they’re active in the art and they’re feeling it in themselves as they try to do things and explore their own bodies.”

Otego resident Ruth Modinger and her 22-year-old daughter Marybeth, whom Modinger described as “multiply disabled,” attended Saturday’s workshop. The opportunity, Modinger said, proved “amazing.”

“We did it because it was an activity that Marybeth could participate in and be normal,” she said. “She could fit in with her peers. She loves to interact and she loves other people, but she isn’t always appropriate with other people. With the children there, everyone was special … and she just fit in, and it was beautiful. Everyone could fit in, doing what they were doing, and there was a mutual understanding that you didn’t know what was going to happen, but it was going to be something special.”

According to a release from the Cerebral Palsy Association of New York, to regulate attendance of this year’s event, parents and guardians were encouraged to participate alongside their children, instead of occupation and physical therapy “buddies.” This modification, Modinger said, only enhanced the experience.

“With Marybeth being nonverbal, she was not able to communicate, but I was able to help her do the movements,” she said. “She could reach toward a toy that she wanted and that was her way of doing the movements; other children got really, really into it and were dancing and doing what the dancers were doing.”

Encouraging such differing levels of participation, Modinger and Dutkowsky said, underscores the program’s mission.

“The two dancers were leading, and one would always model while standing, doing it able-bodied, and another would model from a seated position,” Modinger said. “So, you were always doing what was appropriate for you, and that made it so inclusive. It was just adorable, and the emotions were so real and the kids just truly participated to their ability.”

Click here to read the full article on The Daily Star.

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Upcoming Events

  1. 2021 ERG & Council Conference
    September 15, 2021 - September 17, 2021
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Upcoming Events

  1. 2021 ERG & Council Conference
    September 15, 2021 - September 17, 2021
  2. The Arc’s 2021 National Convention
    September 27, 2021 - September 29, 2021
  3. CSUN Conference
    March 13, 2022 - March 18, 2022