Chris Nikic Shatters Stereotypes to Become First Person with Down Syndrome to Complete an IRONMAN

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Chris Nikic and Dan Grieb running past the finish line

As the sun barely began to rise at 5:52am on Saturday morning, 7 November 2022, Special Olympics Florida athlete Chris Nikic and his Unified partner and coach Dan Grieb, entered the water in Panama City at the start of the IRONMAN Florida triathlon.

Sixteen hours and 46 minutes later, as the nighttime darkness settled in, Chris crossed the finish line and made history of as the first person with Down syndrome to finish a full IRONMAN race.

Chris conquered a 2.4 mile swim, 112 mile bike ride and 26.2 marathon run to complete the IRONMAN in a total time of 16:46:09. During the race, Chris suffered an attack by ants during a nutrition stop and fell off of his bike a couple of times. With blood dripping from his knee, he jumped right back on in a show of true sportsmanship and grit.

Chris’ achievement landed him on the Guinness World Records list. Craig Glenday, Editor-in-Chief, watched Chris persevere with great joy saying, “It’s an honour to welcome Chris into the Guinness World Records fraternity as the first athlete with Down syndrome to complete an IRONMAN, and I look forward to seeing what more is in store from this remarkable young man.”

To stay motivated during the long months of training, Chris and his father Nik developed the 1% better principle – get better, faster and stronger by 1% every day. According to Nik, IRONMAN is further proof that all things are possible with a plan and determination. “To Chris, this race was more than just a finish line and celebration of victory,” he said. “IRONMAN has served as his platform to become one step closer to his goal of living a life of inclusion and leadership.”

“I’m no longer surprised by what Chris can accomplish because I recognize who Chris is; a human being who has goals and dreams just like everyone else,” said Coach Dan. “He wants to make the path easier for those just like him and can follow his lead.”

Continue on to the Special Olympics to read the full article

Photo Credit: Getty, Michael Reaves / Stringer

 

5 Questions That Help Define The Outlines Of Disability Advocacy

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What is the shape of disability activism? There is a lot of natural variation in the large and diverse disabled population, and many different opinions among the smaller core of committed disability activists.

But there are some beliefs, positions, and mindsets that shape the community of individuals and organizations loosely referred to as “Disability Activism.” They aren’t exactly boundaries or litmus tests. They are more like magnets that draw disability advocates in certain directions. What are these key positions? How do we identify them?

Here are five questions that go a long way towards defining disability activism as more than a set of moods and activities, but rather a movement with both diversity and a distinct direction.

Is disability mainly a medical or a social experience?

The disability experience has two main aspects. First, there are people’s own mental and physical conditions, practical impairments, pain, discomfort, illness, and lack or loss of functioning. These form the conventional components of disability itself. It is essentially a person experience, and medically based.

Then there are the barriers people encounter that are related to their disabilities, but come from the outside. This can include lack of physical, sensory, or mental access to essential spaces, processes, goods, and services – and discrimination by individuals, laws, institutions, and practices. These are the social forces that make disability so much more than a purely personal and medical experience.

These two aspects of disability have for some time been referred to as the “Medical” and “Social” models of disability. Most disabled people experience elements of both. But whichever comes to be your dominant concern is both affected by and then further shapes how much you look to yourself for a better life and how much you look to outside people and social forces.

Modern disability activism is mostly based in the Social Model of disability. It is more concerned with collective action to make society more accepting, equitable, and accessible, and focused much less on funding for medical research or development of new treatments and therapies. This less a matter of right or wrong, than it is a difference in focus. But it’s enough of a difference to give disability activism a noticeably different tone, flavor, and direction than, say, fundraising for medical research, or treatment of disabling conditions. Broadly speaking, disability activism seeks to fix society’s ableism, not fix disabled people’s disabilities. That gives disability activism it’s most essential and distinct shape and dimension.

Read the full article at Forbes.

European Space Agency announces call for ‘parastronauts’ with disabilities

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The European Space Agency is diversifying its astronaut pool with its first call for astronauts that is open to candidates with physical disabilities.

In this call for new astronauts, the agency’s first recruitment drive in over a decade, ESA announced that it plans to accept four to six career astronauts (who will be permanent ESA staff) and about 20 “reserve astronauts,” who could fly for shorter missions to destinations like the International Space Station.

As part of this call for astronaut applicants, ESA Director General Jan Wörner revealed during a recent news briefing that the agency is aiming to bring its first “parastronaut,” or astronaut with physical disabilities, on board, according to SpaceNews.

As part of what it calls the “Parastronaut feasibility project,” “ESA is ready to invest in defining the necessary adaptations of space hardware in an effort to enable these otherwise excellently qualified professionals to serve as crew members on a safe and useful space mission,” the agency said in a statement, adding that it will open up this opportunity for one or more applicants.

For this parastronaut, who would be the first astronaut with physical disabilities selected not just by ESA but in history, the agency is “looking for individual(s) who are psychologically, cognitively, technically and professionally qualified to be an astronaut, but have a physical disability that would normally prevent them from being selected due to the requirements imposed by the use of current space hardware,” ESA added in the same statement.

ESA consulted with the Paralympic Committee to determine exactly which physical disabilities would work consistently with space missions, according to a New York Times. Currently, the agency is accepting applicants with leg amputations, significant differences in leg length or who are very short (typically, space agencies have a height minimum for astronaut candidates), according to the Times, though the agency hopes to expand this opportunity to others in the future.

After being recruited, astronaut candidates chosen as part of this project would work with the agency to determine what physical accommodations they might need to fly to space.

Continue on to Space.com to read the complete article.

Bumble Is Driving Powerful Change for Disabled Women Like Me

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The trailblazing social network Bumble has had a busy, history-making month, one that proves the female-focused company’s strategy is poised to shape the future of social media.

First, Bumble rolled out a new policy on body shaming in an effort to “create a kinder and more accepting internet for everyone.”

Their updated terms and conditions explicitly prohibit “unsolicited and derogatory comments made about someone’s appearance, body shape, size, or health. This includes language that can be deemed fat-phobic, ableist, racist, colorist, homophobic or transphobic.”

Users who engage in body shaming, either in their profile or through the app’s chat feature, will receive a warning and repeated violations will result in a permanent ban. To illustrate the prevalence of body shaming, Bumble also released a video featuring disabled users talking about times they were shamed for their bodies.

As a disabled woman, I’ve regularly experienced body shaming on the internet; in fact, the taunts and mocking has steadily increased over the years. People have made fun of my appearance, called me things like “ugly” and “blobfish” and even used my photo in last summer’s cruel new teacher prank on TikTok.

While I mostly just roll my eyes at these comments now, they still hurt because it’s another reminder of just how embedded ableism is in our culture. And it’s also one of the reasons I’ve avoided joining dating apps altogether — I don’t need yet another place to be bombarded by body shaming and ableist rhetoric.

That’s why I was thrilled to see the disability community represented in Bumble’s video. In a world where we continually view disabled bodies as “less than” and unworthy, this ad is the societal pushback we need in 2021. We need to normalize disabilities and disabled bodies and Bumble is taking a much-needed step in that direction.

Bumble user Alex Dacy agrees. The social media influencer, who has spinal muscular atrophy, appeared in the video and was excited to be a part of such a pivotal moment for disability representation, especially coming from a large company like Bumble. The conversation around disabilities and body shaming is long overdue and Dacy is happy to see Bumble leading that conversation.

Read the full article at CNN.

What To Look For In A Disability Organization

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There’s an important question that may get too little attention in the world of disability services, activism, and culture. If we really care about people with disabilities and disability issues, we should all do better than just tossing pocket change in every fundraising bucket we see, or signing up for every walkathon a coworker’s kid puts in front of us.

But how do we choose which disability-related causes and organizations to support? Some criteria are the same for any kind of charity or organization seeking voluntary support. Look for sound, transparent finances and accounting practices. Make sure they use funds to further an important mission rather than simply enriching top executives. Support organizations that give regular, readable reports of services provided, advocacy accomplishments, and goals achieved. Look for strong oversight by a genuinely representative Board of Directors or similar governing entity.

These are basic tips for choosing any charity or cause, for donations or for volunteering. But what other qualities should we look for specifically in disability organizations? Here are some criteria and questions to ask, and why they are important:

  • Medical research and treatment

This is the most traditional and well-known type of disability organization. Their goals are mainly to fund medical research into treatments and cures for specific disabling conditions, and in some cases to help provide some of those treatments to people with those conditions.

The closest thing to an original is the March of Dimes, started by President Franklin D. Roosevelt in 1938 to find a cure for polio. But the model continues, with some modernizing alterations, in the March of Dimes itself and in other legacy organizations like the Multiple Sclerosis SocietyMuscular Dystrophy AssociationUnited Cerebral Palsy Association, and the Alzheimer’s Association. Notably, many of these organizations are better known to the general public for their fundraising events, and less for the work they do.

  • Direct services

Most disability organizations provide at least some personal and material assistance directly to disabled people and their families. For some, direct service is the main focus. Services can include funding for adaptive equipment, paying for certain high-cost medical procedures, or enriching experiences like support groups and summer camps. In local chapters and offices, direct services may also include one-on-one information, counseling, and advocacy assistance to address disabled people’s everyday needs, concerns, and barriers.

Read the full article at Forbes.

Registries of Disabled People Debated in Police Reform Talks

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Some police departments around the country are expanding the use of voluntary registries of disabled people to include those with mental illness.

Victoria Mitchell wishes police would have had the full picture of her son’s struggles with mental illness and reacted differently before an officer shot and killed him last year in Ansonia, Connecticut.

Her son, Michael Gregory, had been diagnosed with bipolar disorder and attempted suicide several times. He was in crisis when he was shot on Jan. 2, 2020, while charging officers with a knife, after telling them they were going to have to shoot him.

Mitchell, a nurse who cares for people with mental illness, supports some parts of a proposed statewide law enforcement registry of people with disabilities including mental illness. The idea is being studied by the state’s Police Transparency & Accountability Task Force as a way to alert officers about someone’s disability and avoid deadly use of force.

“Maybe had something like that had been available, they would have proceeded differently — knowing that he’s not in his right mind,” she said. “They could have called someone in to de-escalate the situation.”

The Connecticut proposal would be a major expansion of voluntary registry programs already in place at a large number of police departments across the country, which are primarily aimed at helping officers find people with Alzheimer’s disease or dementia who go missing and get them back home.

A smaller number of departments have added people with autism and bipolar disorder in efforts to improve their interactions with people with developmental and mental health disabilities, in response to public outcries about shootings by police.

Since 2015, nearly a quarter of the nearly 6,000 fatal shootings by police in the U.S. have involved mentally ill people, according to a Washington Post database of police shootings.

Advocates for disabled people, however, said there are significant problems with the registries including further stigmatizing people with disabilities and privacy concerns.

Read the full article at ABC News.

‘Framing Britney Spears’ Doesn’t Bring Up Disability and That’s a Problem

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Britney Spears is physically able-bodied, beautiful, and successful. It’s not what disability narratives have historically prized throughout the years.

Everyone has an opinion on Britney Spears, even if you think you don’t. Since the pop star’s infamous series of erratic decisions starting in 2007 — which led to her being placed in a conservatorship for the last 12 years — there have been numerous opinions stated about whether Spears is a prisoner or being protected. This week, FX’s “The New York Times Presents: Framing Britney Spears” sought to lift the veil on what many people have heard about Spears and her confinement, but one word was noticeably absent throughout the hour-long broadcast: disabled.

Last year, as the #FreeBritney movement started up, disabled rights advocate and writer Sara Luterman brought up Spears’ conservatorship with regards to disability rights issues in The Nation. A conservatorship, as Luterman lays it out, is “generally imposed on people with a documented disability who are determined, by a judge, to be unable to care for themselves.” A conservator determines how the conservatee spends their money, takes care of themselves day to day, and anything else falling under a wide swath of things deemed necessary.

As Luterman points out, “Guardianship is most commonly used on young adults with intellectual disabilities and older adults with dementia. It isn’t clear how many people are under guardianship in the United States, but in a 2013 report, the AARP’s ‘best guess’ was 1.5 million Americans.

Yet within “Framing Britney Spears” the topic is never couched with regards to disability. Instead they make it clear that conservatorships are usually reserved for those who are elderly. The distinction is pertinent, as elderly doesn’t always mean disabled — but too often disabled always means elderly. The series also limits their discussions to #FreeBritney allies or those with legal connections to conservatorships, and never does it solicit the opinions of disabled rights advocates.

And this is disturbing, because there are elements of Spears’ life that definitely sound troubling — but when you factor in the more nefarious ways conservatorships control a person’s medical and, especially, sexual and reproductive health, it’s reminiscent of the numerous ways those with disabilities have been controlled and prohibited from being considered actual people.

Read the full article at Indie Wire.

DC-Area Man Signs National Anthem in American Sign Language at Super Bowl 55

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As stars Eric Church and Jazmine Sullivan belted out the national anthem at the Super Bowl, a trailblazing Gallaudet University graduate communicated the emotion, lyrics and rhythm to viewers in American Sign Language.

Warren Snipe, known by his stage name Wawa, signed H.E.R.’s rendition of “America the Beautiful” and later “The Star-Spangled Banner.”

“The best performance to start the #superbowl is Warren Snipe with the ASL Star Spangled Banner. I don’t sign but I want to learn now! #SuperBowl2021,” Twitter user @PforPatrick said on the platform.

Prior to his performance, Wawa provided a behind-the-scenes look at his day on his Facebook page. He shared his arrival to his trailer and said he ran into Russell and Ciara Wilson in the stadium tunnel.

Wawa is from the D.C. area and graduated from Gallaudet University, a private school whose mission is to empower deaf and hard of hearing students.

He went on to develop his own niche within the hip-hop genre, called Dip Hop, which he defines as “Hip Hop through deaf eyes,” according to a press release.

“His unique rendering of Dip Hop explores Hip Hop through a mesmerizing blend of audio and imagery, and seeks to put Deaf recording artists on the map in the mainstream public interest,” the release reads.

In 2016, Wawa released an album called “Deaf: So What?!” He is also known for his role in the television series “Black Lightning.”

Read the original article at NBC Los Angeles.

The First Blind Man to Climb Mount Everest and Other Inspiring Athletes Star in Super Bowl Ad

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Erik Weihenmayer

Guaranteed Rate, one of America’s top 5 retail mortgage lenders, announces that the newest ad in its national brand campaign, Believe You Will, will air during this year’s Super Bowl.

The 60-second spot will feature some of the Believe You Will campaign’s ambassadors, including Dustin Poirier, who recently defeated UFC legend Conor McGregor, and Ryan Newman, who will be racing to win his second Daytona 500 next week, marking the one-year anniversary of his infamous, fiery crash.

“It’s exciting to be a part of the most iconic sporting event in the world,” said Guaranteed Rate President and CEO Victor Ciardelli. “Our new Believe You Will campaign is authentically us. We are a mortgage company that believes ‘We Grow For Good’–the more we grow, the more good we can do. We believe people are amazing and can do anything they want in the world; they just have to believe they can.”

Guaranteed Rate’s ad, as well as the entire Believe You Will campaign, was produced by the company’s in-house creative team. The Believe You Will campaign’s ambassadors were identified based on their personal stories and philosophies, which connect directly to the idea that incredible goals can be attained through the power of positivity and belief.

“At Guaranteed Rate, our core values are rooted in the power of belief and positive thinking, to achieve audacious goals,” said Guaranteed Rate Chief Marketing Officer Steve Moffat. “To share that philosophy, we found remarkable stories of people who believed in their abilities to overcome challenges and achieve their goals. We hope that people around the world will be inspired by these stories and will believe that they too can achieve great things.”

The spot airing during the game highlights several of the campaign‘s inspiring ambassadors, including:

  • Dustin Poirier, who believes he will regain the UFC lightweight title after having just defeated the legendary Conor McGregor in a vicious 2nd-round TKO on January 23.
  • Ryan Newman, who believes he will win his second Daytona 500, one year after being in one of the sport’s most shocking crashes ever.
  • Erik Weihenmayer, who believed he could defy the odds to become the first blind person to climb to the summit of Mount Everest.
  • Rose Namajunas, who believed she could rise above extremely tough circumstances and become a UFC champion.
  • Seth Jones, who believed that even though his dad was an NBA veteran, he could forge his own path to become an NHL All Star.
  • Starr Andrews, who believes she can accomplish her dream of being an Olympic figure-skating champion in Beijing.
  • The voice of the ad and the entire Believe You Will campaign is motivational speaker and coach Dr. Eric Thomas, known to many as “The Hip Hop Preacher.”

Guaranteed Rate rolled out its Believe You Will campaign after a year of momentous growth for the company as it met record-breaking consumer demand and launched various high-profile sports sponsorships. Well known for its title sponsorship of the Chicago White Sox’s Guaranteed Rate Field, the company sponsored a wide array of sporting events in 2020, from mainstream sports like NASCAR, IndyCar, MLB and NHL, to more niche sports like professional bass fishing, figure skating, bowling and lacrosse.

To preview Guaranteed Rate’s Believe You Will Super Bowl ad, please visit:
rate.com/about-us/purpose and follow the company on Twitter, LinkedIn, Instagram and Facebook @GuaranteedRate and #believeyouwill.

About Guaranteed Rate Companies

The Guaranteed Rate Companies, which includes Guaranteed Rate, Inc., Guaranteed Rate Affinity, LLC, and Proper Rate, LLC, has more than 9,000 employees in over 750 offices across the United States. Headquartered in Chicago, Guaranteed Rate Companies is one of the largest retail mortgage lenders in the United States, funding over $73 billion in 2020. Founded in 2000 and located in all 50 states and Washington, D.C., Guaranteed Rate Companies has helped homeowners nationwide with home purchase loans and refinances. The company has established itself as an industry leader by introducing innovative technology, offering low rates and delivering unparalleled customer service. 2017 marked the launch of Guaranteed Rate Affinity, LLC, a mortgage origination joint venture between Guaranteed Rate, Inc. and Realogy Holdings Corp. (NYSE: RLGY), a global leader in residential real estate franchising and brokerage. In 2020, the company launched Proper Rate, LLC, a mortgage origination joint venture between Guaranteed Rate, Inc. and @properties, one of the nation’s largest residential brokerage firms. Collectively, the Guaranteed Rate Companies have earned honors and awards including:Top Lender for Online Service for 2018 byU.S. News & World Report; Best Mortgage Lender for Online Loans and Best Mortgage Lender for Refinancing by NerdWallet for 2021; HousingWire‘s 2020 Tech100 award for the company’s industry-leading FlashCloseSM technology; No. 3 ranking in Scotsman Guide‘s Top Retail Mortgage Lenders 2019;ChicagoAgent Magazine‘s Lender of the Year for five consecutive years; Chicago Tribune‘s Top Workplaces list for seven consecutive years. Visit rate.com for more information.

SOURCE Guaranteed Rate

Here’s What Nike’s First Hands-Free Sneaker Means For People With Disabilities

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On Monday, Nike announced the release of its first-ever hands-free sneaker, called the GO FlyEase. Available in three colorways, the style is an advancement of the brand’s FlyEase series, which was originally designed to improve the lives of athletes with disabilities, using zippers and straps rather than laces.

Monday’s release takes that design a step further, with technology that allows wearers to step into their shoes without a single adjustment or closure point. Like the original FlyEase, the GO FlyEase sneakers were designed to make the act of putting on and taking off shoes for the one in four people who have a disability easier. “Usually, I spend so much time [getting into] my shoes,” said Beatrice “Bebe” Vio — a fencer and Paralympic winner, who walks using prosthetic legs — in a press release. (Vio tested the shoe for Nike.) “With the Nike GO FlyEase, I just need to put my feet in and jump on it. The shoes are a new kind of technology, not only for adaptive athletes but for everyone’s real life.”

But while the GO FlyEase hands-free sneakers appear to be a gamechanger for people with disabilities, many assumed that the sneaker was nothing but a comfortable alternative to traditional, lace-up footwear. Rather than innovative, users on Twitter called the design “lazy” and “weird.” In turn, those who recognized that the GO FlyEase shoes could positively impact the lives of many people defended it.

“Before anyone jumps to criticize [Nike’s GO FlyEase sneaker] for its ‘laziness,’ instead think about how THIS is what accessibility can look like, and how this could benefit people with disabilities,” tweeted I’m Not Wearing Pants. Others joined in below her post, sharing reasons for why they believe the GO FlyEase sneakers are inventive, telling firsthand stories about people who could benefit from hands-free shoes. “I have a family member who was in a bad car accident,” tweeted Buckaroo Vito. “Their range of motion is so bad their partner has to tie their shoes for them. These shoes, if they made a range of styles, would be great for them!” Before long, the post by I’m Not Wearing Pants had over 199,000 likes and more than 39,000 retweets, most of which mirrored the sentiment.

Continue to the original article at Refinery.

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