Living With LGMD

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Keisha Greaves

I have Limb-Girdle Muscular Dystrophy (MD); I was diagnosed at the age 24. Keisha Greaves, founder of  Girls Chronically Rock shares her story.

I was born and raised in Cambridge, MA and went to high school in Cambridge. I received my bachelor’s degree in Fashion Design and Merchandising and then furthered my education in getting my Master’s degree in Business.

When I first discovered my symptoms of my MD, it was crazy to me because I started to get symptoms around 2009, while in graduate school. I began to repeatedly fall, and my leg would just give out on me without notice. I would fall to the ground and not be able to pick myself back up, I would need assistance from someone to lift me up with all their might, because it was something I just wasn’t capable of doing on my own. I also began notice when I tried to reach for certain things in the kitchen cabinets or try to exercise I was unable to lift my right arm up all the way. I kind of just thought to myself maybe I need to go on a diet and lose weight, but in the back of my mind I knew it something more.

So I went to see an orthopedic, but I was told that this was more of a neuro-muscular issue, so I then went to see a Neurologist. Once I saw the Neurologist, she then tested me and gave me a muscle biopsy, MRI, an EMG and every other test you can think of. So after multiple tests, I was finally diagnosed with Limb-Girdle Muscular Dystrophy. Limb-Girdle is a form of MD that affects the limb of the shoulders all the way down to the legs, which progressively over time eventually gets worse.

The first thing I thought was how long am I going to live, will I be in a wheelchair soon, and what is my life going to be like from now on. I knew I had to be strong and continue to do what I have to do so I started doing some research on it and read what eating healthy and exercising would help. I joined weight watchers with my cousin, I lost over 36 pounds and I felt great. I’ve able to keep half the weight still off, and I am still determined to lose more.

They have multiple types of Limb-Girdle Muscular Dystrophy, and 5 years later my doctor’s are still trying to figure which type I have exactly. The only thing they know at this point is from the types I may have, can affect my heart which is why I often have to go get a echo-cardiogram test that tests my heart to make sure everything is ok.

Living with Limb-Girdle Muscular dystrophy is still new to me every day. I wake up every day not knowing how my legs are going to feel, or what pain I may have when leaving my house. I try to be very careful when walking because I don’t want to fall and because I won’t be able to pick myself back up. Although I’m on my feet a lot for work, after a certain amount of hours, my legs start to weaken. I am currently a visual merchandiser at different locations for a very popular clothing store. I enjoy my job because it keeps me and my legs active and I enjoy traveling to the different store locations, doing what I love and my part in the fashion industry.

I have the wonderful support from my family and friends but at the end of the day, they have NO IDEA what I go through on daily basis or what I’m feeling. I try to explain to them how my legs feel, but it’s just so hard to explain. I still go out and enjoy my life as normal, but sometimes I always have certain things in the back of my mind.

When going out, I find myself researching about where I am going first, like does this place have stairs? Does it have an elevator? Do they accommodate handicapped people? So all of these things I worry about when I go out, and my friends and family have no idea. Living with MD has made me realize how strong I am and knowing I have no choice but to deal with this. I sometimes get stares because people wonder what a young girl like me is doing either walking with a limp, with a cane, or parking in a handicap parking spot. But I don’t mind because they just don’t know me or know what I have. Although my MD has progressed over the years and getting worse, I have learned to accept it and make certain changes in to my life, such as now walking with a cane in order to keep my balance and helping me not to fall. At this point, I am just taking everything day by day and staying strong. But there is one thing I want people to know by reading this quote.

“There’s no “cure” or a pill will “fix it”, but at one point I thought it may help. And, I thought the same with therapy and food. But it’s my endless support from family and friend that helps. It is hardest thing that I have ever done, and I found myself much stronger for doing it. Never, ever, underestimate the power of your desire. If you want to live badly enough, you can live. The greater question, at least for me was: How do I decide I want to live? That is the question I’m still working on?”

girlschronicallyrock.com

StableStrides: Why Horses are Used for Therapy for Veterans

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A man wearing camoflague standing next to a black horse

by April Phillips, StableStrides

Horses are not only “good for the inside of a man,” but uniquely suited for mental health therapy for veterans due to both instinct and behavior. When paired with a human, a horse will intuitively react to behavioral patterns or body language from the human.

This gives insight into how a person is being perceived. Because they are prey animals, horses are constantly on the lookout for danger and respond quickly with either confrontation or flight. This instinct allows for a deeper level of intervention with a therapist that surpasses any other mental health treatment.

StableStrides is a 501(c)(3) nonprofit whose primary focus is mental health therapy with horses. Situated in the large military community of Colorado Springs, CO, StableStrides is uniquely positioned to serve veterans, active duty servicemembers and military families. On a mission to significantly improve the lives of people through a connection with horses, StableStrides exists because of horses and their ability to touch the lives of people.

Horses and humans share a history that goes back to ancient times and has continued to today. Their role in medicine was first prescribed by Hippocrates (460 BC-375 BC) as a form of natural movement that strengthened the body. Hippocrates, the “Father of Medicine,” believed in health that united body and mind and studied treatment for trauma and mental healthcare. Since then, relationships between horse and human has been studied and incorporated into modern medical practices, both physical and mental.

The physical aspects of horseback riding are used to develop physical strength, muscle development and other physical benefits, while the relationship between horse and human is known to strengthen both mind and spirit. Today, the term Equine Assisted Activities and Therapies (EAAT) defines the use of the horse in recreational and medical intervention. A large portion of EAAT is focused on veterans and their healing journeys during and after service. When partnered with a horse, a veteran is asking the horse to enter into a relationship with them that requires mutual trust and some degree of vulnerability.

One veteran reflects on his mental health sessions at StableStrides by asking:

“How could they go from resting and relaxed to full alert, with a first instinct to run, then to relax again, in seconds? How they could let go of that tension and anxiety and just “be?” As a herd animal, they entrust leadership to the strongest. That leader makes the decisions for the herd for as long as it’s capable or trusted. How can a prey animal, the horse, come to trust an apex predator, a human, with their safety? What a concept. This huge, powerful animal, easily capable of killing me, that fears me because I am a predator, could come to trust and work for me because it wants to.”

As prey animals, centuries of domestication have done little to lessen the horse’s response to danger. They understand that their best chance in escaping danger is to flee. As a result, the horse’s “fight-or-flight” instinct is used for decision making. In addition, horses are extremely perceptive and communicate with body language to convey fear, anger, calm or anxiety.

In a herd, each member relies on the leaders in the hierarchy to make decisions for the safety of the herd, if that leader can be trusted. When in the absence of a herd, the horse will determine if the human is to be trusted as the leader. If not, the horse will decide on his own what is safest. 

Therapists have selected horses to incorporate into therapy due to these characteristics, including what many call “mirroring of emotions”. While horses aren’t mirrors, they will often reflect their leader’s emotions. If their leader senses danger and responds with fear, so will the horse. If the horse senses calm in their leader, the horse will likewise be calm, trusting their leader’s instinct. In mental health therapy, the therapist incorporates the horse and the relationship between veteran and horse for a dynamic and therapeutic environment. Through the horse’s reactivity, a veteran and therapist are able to examine and process behavioral reactions or emotional incongruencies. This requires the veteran to be present and mindful as to what is unfolding, and to be transparent about reactions.

Many organizations such as StableStrides exist for the horse-human connection and improve lives through EAAT. Through a connection with horses, mental health therapy strengthens families and individuals. Because of the horse’s unique qualities and instincts, incorporating horses into mental health allows for a therapeutic intervention that surpasses any other form of mental health therapy.

Photo Credit: Amy May Images

Supporting Mental Health During These Times

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The outbreak of COVID-19 may be stressful—it can be difficult to cope with fear and anxiety, changing daily routines, and a general sense of uncertainty.

Although people respond to stressful situations in different ways, taking steps to care for yourself and your family can help you manage stress.

Stress during an infectious disease outbreak can include

 

  • Fear and worry about your own health and the health of your loved ones
  • Changes in sleep or eating patterns
  • Difficulty sleeping or concentrating
  • Worsening of chronic health problems
  • Increased use of alcohol, tobacco, or other drugs

Things You Can Do to Support Yourself

Take breaks from the news. Set aside periods of time each day during which you close your news and social media feeds and turn off the TV. Give yourself some time and space to think about and focus on other things.

Take care of your body. Take deep breaths, stretch, or meditate. Try to eat regular, well-balanced meals; get some physical activity every day; give yourself time to get a full night’s sleep; and avoid alcohol and drugs.

Make time to unwind. Try to engage in activities and hobbies you enjoy. Engaging in these activities offers an important outlet for pleasure, fun, and creativity.

Connect with others. Talk with people you trust about your concerns and how you are feeling. Digital tools can help keep you stay connected with friends, family, and neighbors when you aren’t able to see them in person.

Set goals and priorities. Decide what must get done today and what can wait. Priorities may shift to reflect changes in schedules and routines, and that is okay. Recognize what you have accomplished at the end of the day.

Focus on the factsSharing the facts about COVID-19 and understanding the actual risk to yourself and people you care about can make an outbreak less stressful.

Call your healthcare provider if stress gets in the way of your daily activities for several days in a row.

Source: nimh.nih.gov

FDA greenlights 1st video-game based treatment for children with ADHD

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screenshot of video game with many colors

The first video game-based treatment for attention deficit hyperactivity disorder (ADHD) has been approved by the US Food and Drug Administration (FDA).

The video game, called EndeavorRx and approved on Monday, will be prescription only and aimed at children between the ages of eight and 12 with certain types of ADHD.

It will be used alongside other treatments, such as clinician-directed therapy, medication and educational programs.

ADHD is a common neurodevelopmental disorder which is usually first diagnosed in children and can last into adulthood.

Approximately 4 million children aged six to 11 are affected by ADHD, the symptoms of which include difficulty staying focused and paying attention and difficulty controlling behavior.

This is the first game-based therapy to be granted marketing authorization by the FDA for any condition, the agency said.

“The EndeavorRx device offers a non-drug option for improving symptoms associated with ADHD in children and is an important example of the growing field of digital therapy and digital therapeutics,” Dr Jeffrey Shuren, director of the FDA’s Center for Devices and Radiological Health, said in a press release.

The game, which can be downloaded as an app onto a mobile device, was authorized for marketing after the FDA reviewed five clinical studies that included more than 600 children.

The agency noted that some negative effects were reported, such as frustration, headache, dizziness, emotional reaction and aggression, but said there were no “serious” adverse effects reported.

While playing the game, children steer an avatar through a course dotted with obstacles, collecting targets to earn rewards.

Akili, the company that created EndeavorRx, has said that children should interact with the game 30 minutes per day, five days a week over the course of a one-month treatment cycle.

Continue on to KTLA News to read the complete article.

This Rapper is Joining the Fight for Mental Health Awareness and Suicide Prevention

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Waka Flocka pictured wearing bright green at event in Hollywood

On the evening of May 25, near the end of Mental Health Awareness Month, rapper Waka Flocka tweeted that he was going to dedicate his life to suicide prevention and mental illness. This tweet likely stemmed from the reminder of his deceased brother’s upcoming birthday, which would happen less than a week later.

The rapper tweeted his support by saying, “I’m officially dedicating my life to suicide prevention and mental illness!!! Y’all not alone Waka Flocka Flame is with y’all now!!!!”

In 2017, Waka Flocka revealed in an interview with the show The Therapist that his younger brother committed suicide in 2013. In this interview, he stated that his brother, Coades, tried to call him before taking his life, leaving Waka Flocka to wonder what would have happened if he picked up the phone.

While the specifics of what the renowned rapper will do is unknown at the moment, Waka Flocka has made his goals clear, stating in a follow-up tweet that he has officially accepted his brother’s passing and believes he is now in a better place.

Waka Flocka stated, “You have no idea how it feel to wanna take your own life man…my little brother took his own life…This year I’m officially accepting the fact that he’s in a better place.”

The coronavirus and people with disabilities: WHO highlights this high-risk group

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Groups at high risk for the coronavirus have been a top priority of the World Health Organization (WHO) and the Centers for Disease Control and Prevention (CDC), as protocol calls to maintain focus on keeping populations such as the elderly, those with underlying medical conditions, and pregnant women safe. One group, however, that has seldom been addressed during the outbreak is that of disabled people, which the WHO is now bringing to light.

The organization at the forefront of the pandemic response discussed the risk faced by those with disabilities during a livestream on TikTok — where it aims to provide accurate information, resources and support for the community — on Thursday. Lindsay Lee, a disability expert at WHO, led the conversation and provided reasons — from lack of information to reliance on people and products for assistance — as to why those living with disabilities may be at greater risk of contracting the illness of COVID-19.

According to a guidance document — which will soon be available on WHO’s site and which was provided to Yahoo Lifestyle by Lee — the direct limits on the safety and health of people living with disabilities include barriers to implementing basic hygiene measures, difficulty in enacting social distancing and the need to touch things to obtain information from the environment or for physical support. Other considerations with serious implications also include access to both healthcare and public health information.

The National Council on Disability (NCD) tells Yahoo Lifestyle that the last is of utmost importance. “People with disabilities need equal access to critical COVID-19 updates and official communications,” says Neil Romano, Chairman of the National Council on Disability, “which means sign language interpreters, captioning, and plain language, and federal law requires it.”

A March 18 letter from the NCD addressed to Stephanie Grisham, White House Director of Communications, brought attention to the need of Taskforce interpreters at public briefings for the millions of people in the United States who are deaf or hard of hearing. The NCD didn’t immediately confirm if the White House provided a response.

In the meantime, WHO took to TikTok to inform people of the proper measures to take now if directly or indirectly impacted by disability, including making sure that a person’s assistive products are properly disinfected. “These include wheelchairs, walking canes, walkers, transfer boards, white canes, or any other product that is frequently handled and used in public spaces,” the WHO document reads.

However, basic protection measures become even more important for a disabled person, and those around them, if they require care and cannot navigate the healthcare system themselves. In that case, WHO recommends that everyone in a disabled person’s household, including trusted friends and family, is aware of any important and relevant information that might be needed if that person becomes ill.

Precautions must also be put in place in case a caregiver becomes sick. “Consider increasing the pool of those you can call upon, in preparation of one or more becoming unwell or needing to self-isolate,” the WHO document states. “If you organize caregivers through an agency, find out what contingency measures they have in place to compensate for a potential workforce shortage.”

Shannon McCracken, vice president of government relations for ANCOR, the leading nonprofit trade association representing providers of services to people with disabilities, explains to Yahoo Lifestyle that some precautions are specific to certain groups, which ultimately impacts how vulnerable each individual really is to the illness. However, all people with disabilities are united through the greater efforts that must be made to maintain their health.

Continue on toYahoo News to read the complete article.

This AI system predicts seizures an hour before they happen with 99.6% accuracy

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A pair of researchers from the University of Louisiana at Lafayette have developed an artificial intelligence system that predicts epileptic seizures with 99.6 percent accuracy.

The World Health Organization estimates that between 4 and 10 in every 1,000 people suffer from epilepsy-related seizures. According to numerous studies, 70 percent of those afflicted have symptoms that can be mitigated with medication. The problem is that many patients are unable to tell when they enter the preictal stage (the period directly before a seizure occurs) when such intervention would be effective.

Professor Magdy Bayoumi and researcher Hisham Daoud, the duo who created the system at University of Louisiana at Lafayette, want to take the guesswork out of seizure prediction. According to the pair’s research paper:

We propose four deep learning based models for the purpose of early and accurate seizure prediction taking into account the real-time operation. The seizure prediction problem is formulated as a classification task between interictal and preictal brain states, in which a true alarm is considered when the preictal state is detected within the predetermined preictal period.

Predicting a seizure is no small feat, especially for AI. Machine learning systems essentially run on data; the more you feed them the better the training and results. Unfortunately the frequency, detection time before onset, duration, and relative intensity of a seizure can vary wildly from one subject to the next.

This means, unlike teaching an AI to recognize photos of cats by feeding it millions of cat images, you can’t use a general purpose training dataset to create a seizure-detection system for individual patients. The researchers instead use long-term records of a person’s cranial EEG scans to develop a sort of baseline for brain activity before, during, and after seizures.

Patient’s personal data is required to develop the training and prediction paradigm, but the results are nothing short of astounding. Bayoumi and Daoud report near perfect accuracy at 99.6 percent detection with a false detection rate of nearly zero.

This has the potential to dynamically improve the lives of the estimated 50 million people afflicted with epilepsy world-wide.

Continue on to The Next Web to read the complete article.

FDA approves new breakthrough therapy for cystic fibrosis

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trikafta package

The U.S. Food and Drug Administration (FDA) recently approved Trikafta (elexacaftor/ivacaftor/tezacaftor), the first triple combination therapy available to treat patients with the most common cystic fibrosis mutation. Trikafta is approved for patients 12 years and older with cystic fibrosis who have at least one F508del mutation in the cystic fibrosis transmembrane conductance regulator (CFTR) gene, which is estimated to represent 90% of the cystic fibrosis population.

“At the FDA, we’re consistently looking for ways to help speed the development of new therapies for complex diseases, while maintaining our high standards of review. Today’s landmark approval is a testament to these efforts, making a novel treatment available to most cystic fibrosis patients, including adolescents, who previously had no options and giving others in the cystic fibrosis community access to an additional effective therapy,” said acting FDA Commissioner Ned Sharpless, M.D. “In the past few years, we have seen remarkable breakthroughs in therapies to treat cystic fibrosis and improve patients’ quality of life, yet many subgroups of cystic fibrosis patients did not have approved treatment options. That’s why we used all available programs, including Priority Review, Fast Track, Breakthrough Therapy, and orphan drug designation, to help advance today’s approval in the most efficient manner possible, while also adhering to our high standards. The FDA remains committed to advancing novel treatment options for areas of unmet patient need, particularly for diseases affecting children.”

Cystic fibrosis, a rare, progressive, life-threatening disease, results in the formation of thick mucus that builds up in the lungs, digestive tract, and other parts of the body. It leads to severe respiratory and digestive problems as well as other complications such as infections and diabetes. Cystic fibrosis is caused by a defective protein that results from mutations in the CFTR gene. While there are approximately 2,000 known mutations of the CFTR gene, the most common mutation is the F508del mutation.

Trikafta is a combination of three drugs that target the defective CFTR protein. It helps the protein made by the CFTR gene mutation function more effectively. Currently available therapies that target the defective protein are treatment options for some patients with cystic fibrosis, but many patients have mutations that are ineligible for treatment. Trikafta is the first approved treatment that is effective for cystic fibrosis patients 12 years and older with at least one F508del mutation, which affects 90% of the population with cystic fibrosis or roughly 27,000 people in the United States.

Continue on to the FDA to read the complete article.

In Helping His Dad With Diabetes, Young Mexican Chemist Pioneers Healthy—and Cheap—Sugar Substitute

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Javier Larragoiti and teamin lab developing the cheap sugar substitute

When 18-year old Javier Larragoiti was told his father had been diagnosed with diabetes, the young man, who had just started studying chemical engineering at college in Mexico City, decided to dedicate his studies to finding a safe, sugar-alternative for his father.

“My dad tried to use stevia and sucralose, just hated the taste, and kept cheating on his diet,” Larragoiti told The Guardian. Stevia and sucralose are both popular sugar alternatives, and many reduced-sugar products available today contain one or the other.

With stevia and sucralose out of the picture, the young chemist needed to keep searching. He started dabbling with xylitol, a sweet-tasting alcohol found in birch wood but also in many fruits and vegetables. Xylitol is used in sugar-free products such as chewing gum and also in children’s medicine, but is toxic to dogs even in small amounts.

“It has so many good properties for human health, and the same flavor as sugar, but the problem was that producing it was so expensive,” said Larragoiti. “So I decided to start working on a cheaper process to make it accessible to everyone.”

Xylitol Made Cheaper

Corn is Mexico’s largest agricultural crop, and Javier has now patented a method of extracting xylitol from discarded corn cobs. Best of all, with 28 million metric tons of corn cobs generated every year in Mexico as waste, there’s no shortage of xylitol-generating fuel.

Simultaneously, Larragoiti hit on the idea of how to make xylitol less expensive, while inventing a way to reuse the 28 million tons of corn cobs, substantially upgrading the traditional means of disposal: burning them.

Especially in a pollution-heavy country like Mexico, reducing the amount of corn waste burned, would eliminate a portion of the carbon emissions.

His business, Xilinat, buys waste from 13 local farmers, producing 1 ton of the product each year. His invention was awarded a prestigious $310,000 Chivas Venture prize award, which will enable him to industrialize his operation and scale up production 10-fold, diverting another 10 tons of corn cob from the furnace.

Continue on to the Good News Network to read the complete article.

NFL Football Star Pays For 500 Mammograms to Honor His Mother

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DeAngelo Williams pictured with many women posing in pink t-shirts for the Breast Cancer Pink Camp

Former NFL running back DeAngelo Williams has paid for over 500 mammograms for women—because, to him, the issue is personal.

He always wore the color pink in his hair, which flowed out from his helmet, during his later years as a player for the Carolina Panthers and Pittsburgh Steelers.

“Pink is not a color—it’s a culture to me.”

He created the DeAngelo Williams Foundation in honor of his mother, Sandra Hill, who died of breast cancer in 2006. All four of her sisters then died from the same disease—all before the age of 50.

He originally chose to pay for 53 mammograms because his mom died at age 53. He called the project #53StrongforSandra.” Since then, they have paid for 500 mammogram screenings for under-insured women in four states—North Carolina, Pennsylvania, Tennessee, and Arkansas, all states he has football ties in.

Continue on to The Good News Network to read the complete article.

5 tips for starting a conversation about your mental health

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two friends taking about mental health

By Rebecca Ruiz

It wasn’t long ago that the stigma of talking about one’s mental health forced many people to stay silent. Now though, messages encouraging people to share their struggles and seek help are widespread, including on Instagram, in public service announcements, and in celebrity interviews. Even Burger King launched a campaign to raise awareness and mark last May’s Mental Health Awareness Month.

Yet it’s one thing to notice and appreciate this newfound acceptance and another to acknowledge to someone else that you’re experiencing a mental health condition or illness. People typically avoid disclosing that information for several reasons, including internalized stigma and shame, fear of rejection, worry about discrimination at work, and uncertainty about whether they need treatment.

Indeed, mental health experts say it’s critical for people to weigh their concerns and disclose their experiences with others if and when it feels necessary and right.

“It’s really on a need-to-know basis,” says Quinn Anderson, manager for the HelpLine operated by for the National Alliance on Mental Illness (NAMI). Run by staff and volunteers, the HelpLine is designed to answer callers’ questions about symptoms of mental health conditions, how to help family members get treatment, where to find local support groups and services, and more.

If you’ve decided it’s important to tell someone about your mental health, try following these tips so that you’re prepared to have the conversation — and have a plan for handling what may come next:

1. Weigh the pros and cons. 

Patrick Corrigan, a distinguished professor of psychology at the Illinois Institute of Technology, helped develop a program called Honest, Open, Proud that provides guidance for those who want to disclose a mental health condition. The first step in this process is considering the potential risks and benefits.

In Corrigan’s research on the positive aspects of “coming out,” he’s found that people who are fed up with having to keep a secret feel freer once they’ve shared what they’re experiencing. But that sense of liberation may be elusive if the other person in the conversation responds with shame or judgment.

For those who take the risk of telling a supervisor, the pay-off can be certain workplace accommodations, which employers are required to offer per the Americans with Disabilities Act. An employee with a psychiatric disability may receive a flexible schedule, sick leave, and a tailored break schedule, in addition to accommodations like work space with reduced exposure to noise, various types of equipment and technology, and modified job duties. Even though employers are not permitted to discriminate against workers based on a psychiatric disability, an employee may worry that disclosing a condition puts their job prospects or security at risk.

“We do not have an agenda to talk people into coming out,” says Corrigan, noting the potential downsides. “Once you’re out, it’s not easy to go back in.”

2. Arm yourself with information about your experiences or condition. 

When discussing a sensitive topic, you’re likely to have done some research in advance in order to feel confident. Talking about your mental health is no different. If you’ve been diagnosed by a medical professional, or simply noticed worrisome symptoms that seem associated with a mental health condition, familiarize yourself with the relevant language that can help you communicate what you’re experiencing to others.

Such education can inform your understanding of what you’re going through — as can learning about others’ experiences — and thereby reduce your own sense of shame or stigma.

3. Decide who needs to know and what you want from them. 

If you’re already seeing a mental health provider, that person may be able to help determine who — if anyone — you should tell. Anderson says a provider can help you develop a plan, and in some cases, offer to invite a loved one to a joint appointment so you’ll have backup and the therapist can explain your treatment.

When deciding on your own whether to disclose, consider if it’s important, or even critical, for certain people to know. While you might hope to explain recent behavior to a loved one, ask for support, or perhaps seek acceptance, telling someone who isn’t capable of recognizing your needs and reacting with compassion or empathy could be devastating.

Anderson says it’s also helpful to prepare responses if someone asks how they can help. Answering that question can be as simple as describing what it looks like when you’re really struggling, along with guidance about how they can best support you.

The Honest, Open, Proud programs sometimes recommends against telling people who are generally bigoted, people who use disrespectful language (think “crazies” or “wackos”), people who attribute social problems to mental illness, and people who oppose giving fair or new chances to those who’ve experienced a mental illness.

Before opening up about your mental health, be clear about why you’ve chosen to tell a certain person, what you hope to gain, and how you’ll proceed if they can’t emotionally handle the information.

4. Choose an ideal time to talk, and keep it simple. 

Dawn Brown, director of community engagement for NAMI, recommends choosing a time where you’re alone, relaxed, and have enough time to explore the subject.

“I wouldn’t wait ’till you have a fight with your spouse to bring it up,” she says.

Similarly, sticking to the basic facts of what you’ve experienced and why you’re sharing that information can provide necessary guardrails for the conversation. If you feel ready to delve deeper, consider how that might affect the discussion if the person you’re talking to isn’t prepared to do the same.

5. Seek additional support and resources. 

No matter how your conversation goes, it can be essential to seek additional support from groups and likeminded peers who will help you feel more empowered. Disclosing, whether to a medical professional or loved one, may be one step in a long recovery journey. NAMI provides resources like contact information for local support groups to those who call the HelpLine, and Honest, Open, Proud provides similar referrals at the program’s end.

Feeling connected to the right support can be particularly important for people who can’t find culturally competent mental health providers, or those whose family members and friends have vastly different views of mental health as a result of cultural attitudes or beliefs.

Anderson says it’s important to stay hopeful and remember that help is out there.

“There will be individuals who don’t get it, who will always have a discriminatory perspective, and individuals who don’t know but want to help, and then those who really get it,” she says.

Continue on to Mashable to read the complete article.

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